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NB: This vacancy closed to applications on 23/08/2019.

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Manager - UKHCDO National Haemophilia Database

Job Reference: J183-A-19-53226

Central Advertising - Other
United Kingdom Haemophilia Centre Doctors’ Organisation (UKHCDO) Ltd.
£47,000-£67,000 depending on experience

This advertisement has been placed by the organisation named in the 'Department' section above.

Should you require further information regarding this vacancy please contact the organisation direct.

The National Haemophilia Database (NHD) was established in 1968 to act as a registry for all UK patients with heritable bleeding disorders and subsequently monitored treatment and complications for these disorders. In 2002, the database moved to Manchester Royal Infirmary (MRI) and more recently, having outgrown its accommodation, to an office development close to MRI. The administration of the Database was adopted from UKHCDO (Registered Charity) by its commercial arm, UKHCDO Ltd, in 2008.

NHD activities have grown considerably in scope over recent years and we wish for this to continue in order to provide enhanced quality of data and sustainable resource. We collect, collate and analyse data from more than 25,000 UK patients with bleeding disorders. This enables us to support direct patient care and to provide regular anonymised aggregate reports for Health Commissioners, the Department of Health and the Public Health England.

Other important functions of the database include projects for epidemiological (non-interventional) clinical research, post-marketing surveillance, pharmaco-vigilance, and mapping and analysis of current treatment trends to facilitate modelling of future trends and alternative therapeutic approaches.

Clients for our data and anonymised analyses include the Departments of Health of England and the devolved administrations, Healthcare Commissioners, the Commercial Medicines Unit, Public Health England, and the Pharmaceutical Industry. We also support observational clinical research for UKHCDO and its working parties.

A need has been identified for a manager of the NHD, working closely with NHD Director and UKHCDO, to manage and deliver the operational activities of the database to deadlines on a day by day basis and to help assist in the management and shape of future development for the database, manage its clients and help identify further funding opportunities.

The NHD Manager will be responsible for leading a multi-disciplinary team, to sustain the operational and business effectiveness of the organisation. The Database includes two full time statisticians, an administrative officer and five support staff. Through the effective use and development of the team the post-holder will be responsible for providing a high quality and timely analytical service to UKHCDO, the NHS and other customers.

As well as managing the reporting & analytical services, the post holder will champion the use of analysis, evidence and intelligence to improve decision making in support of the guiding objectives of UKHCDO charity.

The post holder requires excellent people management skills and is responsible for leading and building a high performing team.


Master’s degree or equivalent. Experience of analytics and operational management. Advanced communications skills and the ability to lead a multidisciplinary team and to collaborate and negotiate with internal and external partners in the pharmaceutical industry and the NHS.Experience of production of data analysis policies and procedures

In depth knowledge of GDPR

Broad understanding of healthcare, health-related R&D, health technologies and technology transfer processes.


The successful candidate will have to lead a small multidisciplinary team of data managers and statisticians, liaising closely with our IT support company and with stakeholders and clients for our data and analyses.

The projects will involve working with national organisations such as the Department of Health, Public Health England, NHS England’s Commercial Medicines Unit (CMU),National Information Governance Board for Health and Social Care (NIGB),NHS Digital, Area Commissioning Teams and National Commissioning Board etc.

27 days holiday (+ bank holidays)

Parking on site, 10 mins walk from Piccadilly

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

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