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NB: This vacancy closed to applications on 22/09/2021.

Information Governance Lead, Genomics

Job Reference: 990-1-EI6423-CE

NHS England and NHS Improvement
£65,664 - £75,874 per annum

Our Organisation

NHS England and NHS Improvement came together on 1 April 2019 as a new single organisation. The NHS Long Term Plan focuses on delivering integrated care to patients at the local level and we can best support the NHS to deliver this as a single integrated organisation.

At the NHS, we are reminded every day of how important life is. As a flexible working friendly organisation, we want to be sure that you can work in a way that is best for us and for our patients, and for you. Speak to us about how we might be able to accommodate a flexible working arrangement whether that’s job share, part time or another flexible pattern. In addition, although the role advertised may have an ‘home’ office base indicated, we remain committed to supporting flexibility around workplace locations. If it works for the service, we will do our best to make it work for you.

Our new operating model represents a strong shift to regional delivery supported by expert corporate teams. Local health systems are supported by our integrated regional teams who play a major leadership role in the geographies they manage.

We are jointly committed to creating and maintaining a fair and supportive working environment and culture, where contributions are fully recognised and valued by all and staff feel empowered to carry out their duties to the best of their abilities. As employers we are committed to promoting and protecting the physical and mental health and well-being of all our staff. This underpins our values as set out in the NHS Constitution, supports us to be an Employer of Choice and ultimately enables our employees to support the effective care of our patients.

The NHS Genomic Medicine Service (GMS), approved by the NHS England Board in March 2017, is world leading through the introduction of cutting-edge genomic technologies, including whole genome sequencing into routine care in the NHS.

The NHS GMS builds upon the NHS contribution to the 100,000 Genomes Project and is central to the delivery of the NHS Long Term Plan commitments on genomics. The NHS GMS will encompass establishing genomics in routine clinical care and ongoing genomic projects, including those emerging from the Life Sciences Industrial Strategy (LSIS) and research both nationally and internationally.

The NHS England and NHS Improvement Genomics Unit (GU) was established to deliver on these ambitions. The GU reports to the Director of Strategy and Policy in Specialised Commissioning, who will oversee, in conjunction with the Chief Scientific Officer (Senior Responsible Officer for Genomics), the development of NHS England and NHS Improvement’s policies and approach to genomics and related issues such as personalised medicine.

The GU is in the Finance, Commercial and Specialised Commissioning Directorate and will work with all Directorates across NHS England and NHS Improvement to deliver the overall programme of work. The GU is responsible for the development of NHS England and NHS Improvement’s strategies and policies for genomics and related issues such as personalised medicine, working closely with relevant National Clinical Directors, Chief Professional Officers and their teams, national Medical Directors and with NHS England’s field force

As an Information Governance Lead, Genomics, the post holder will work as part of a dynamic team in driving forward the national Genomics programme through implementation and assurance of Information Governance best practice.

The post holder will be embedded within the Genomics programme team with a reporting line into the Data Protection Officer, via the Corporate Information Governance team.

They will provide IG support and oversight of NHS England and NHS Improvement’s complex Genomics programme by monitoring its compliance with the Data Protection Act and UK GDPR, while leading on Data Protection Impact Assessments (DPIAs), personal data requests and incident management, and providing specialist advice on information disclosures and general IG arrangements.

The post holder will:

  • Develop an IG operating model for the Genomics programme that fully discharges NHS England and NHS Improvement’s IG policies in line with Corporate IG procedures
  • Monitor the programme’s adherence to the IG operating model
  • Establish and oversee an effective IG governance framework for the programme, chairing meetings as required and ensuring regular engagement with the DPO and Corporate IG team
  • Provide senior subject matter expertise to the Genomics programme, advise on complex IG matters and ensure pro-active IG input as the programme evolves to ensure it always remains compliant with data protection and privacy legislation
  • Lead on the development and approval of Data Protection Impact Assessments (DPIAs) associated with the Genomics programme in line with established Corporate IG procedures
  • Manage Subject Rights Requests related to the Genomics programme in line with established Corporate IG procedures, ensuring they are responded to within statutory timescales and to satisfactory levels of accuracy and quality
  • Ensure adequate IG arrangements are in place for data processors and sub-processors appointed by the programme
  • Investigate and manage any data near misses and breaches in line with established Corporate IG procedures, ensuring they are reviewed and, if necessary, reported to the ICO within 72 hours
  • Liaise with the Information Commissioners Office (ICO) about investigations, complaints and potential breaches related to the Genomics programme
  • Have a robust understanding of NHS intelligence landscape including NHS data, data flows and quality, commissioning, performance, and data management.
  • Ensure that NHS England and NHS Improvement’s IG policies and procedures are embedded in the Genomics programme.
  • Develop and maintain IG processes within the programme to ensure the confidentiality, security and quality of personal and other sensitive information, ensuring compliance with legislation, standards and best practice.
  • Support NHS England and NHS Improvement’s IG Assurance team to undertake IG appraisals of the programme to provide assurance of the programme’s GDPR compliance to the DPO and Senior Information Risk Owner (SIRO)
  • Liaise with and advise National Directors, Directors and functional leads where required.
  • Support the needs of the business, providing advice and guidance to staff and ensuring best practice is adhered to.
  • Have good project management skills, including the ability to manage competing priorities and tight deadlines for self and team, and work autonomously to drive own work programme and that of team members

For further details / informal visits contact:

Name: Daniel Vincent

Job title: Senior Business Manager

Email address:

Our commitments to you

We are passionate about creating an inclusive workplace that promotes and values diversity. We know through experience that different ideas, perspectives and backgrounds create a stronger and more creative work environment that delivers better patient outcomes. We welcome applications irrespective of people's age, disability, sex, gender identity and gender expression, race or ethnicity, religion or belief, sexual orientation, or other personal circumstances. We have policies and procedures in place to ensure that all applicants are treated fairly and consistently at every stage of the recruitment process, including the consideration of reasonable adjustments for people who have a disability.

Applications are welcomed from applicants who wish to apply for a position on the basis of a smarter or flexible working arrangement. Where candidates are successful at interview, such requests will be taken under consideration and accommodated where the needs of the service allow.

Please note that we currently do not accept applications via CV or recruitment agencies.

The NHSBSA is responsible for the processing of your application; a privacy notice is attached to advise you on how we will process your personal data.

After applying via NHS Jobs, your submitted application will be imported into our preferred third-party recruitment system. All subsequent information regarding your application will be generated from If you are appointed to a post, information will also be transferred into the NHS Electronic Staff Records system.

You will not be able to track the progress of your application or receive messages through NHS Jobs, and furthermore, as an employer, we will not be able to respond to any e-mails sent to us via NHS Jobs. If you have a query relating to your application, please contact the recruitment team on or 0300 330 1369.

Tier 2 Certificate of Sponsorship

Applications from job seekers who require current Tier 2/skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information please visit the UK Visas and Immigration website.

From 6 April 2017, Tier 2/skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement.

For further advice, please visit Applying from overseas.

UK Registration

Applicants must have current UK professional registration. For further information please see applying from overseas.

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