Tuberous Sclerosis Support worker

Job summary

To work with other members of the team to deliver excellent person centered, safe and compassionate care for all children and adults with Tuberous Sclerosis Complex (TSC) under the care of the Bath Centre. To provide accurate and sensitive information, advice and support to patients, their families and carers. To support the smooth running of the TSC clinics.

Main duties of the job

Alongside the Specialist Nurse:

• Provide accurate and sensitive information and support to people with tuberous sclerosis complex (TSC) their families and carers on day to day issues of living with the condition.
• Provide current and timely information and signposting to families and carers to appropriate support services.
• Support the smooth running of clinics including taking patient observations.
• Alongside the specialist nurse and specialty doctor support and monitor patients on medical treatment including ensuring patients have had monitoring, obtaining blood test results and providing advice on management of side effects.
• Maintain an up to date knowledge of TSC including complications, treatments and new developments in care.
• Alongside the specialist nurse provide training and information on TSC and participate in the review of information provided by the clinic.
• Manage own time effectively and perform allocated tasks within a reasonable time frame, knowing when to seek support, assistance and advice from other team members.
• Undertake general clerical duties that may be associated with the smooth running of the clinic.

About us

At the RUH we're proud to put people at the heart of what we do, working together as one team to make a difference for our patients, each other, and our community. No matter what your role is, we value everyone's contribution in supporting the exceptional, person-centred care we pride ourselves on.

We are committed to creating a compassionate and inclusive environment. This can be seen in our growing community of staff networks - celebrating successes and creating opportunities to listen and learn. We value our differences, champion kindness and civility, and truly believe that diversity makes us stronger.

A culture of learning, developing and innovating is the thread that runs throughout our whole organisation. We want to support you to thrive, taking your career to its full potential.

We value staff wellbeing, with a well-established programme of support. We believe in a holistic approach spanning all aspects of living a healthy life, including physical, emotional, spiritual and financial wellbeing. We've even got a pool!

We are committed to supporting you and hope you want to join our team. In the meantime, find out more about living and working the beautiful historic city of Bath, learn about our extensive package of staff benefits, and read about how we're providing healthcare fit for the future with the landmark Dyson Cancer Centre and our passion for research.