Motor Neuron Disease Co-ordinator

North Middlesex University Hospital NHS Trust

Information:

This job is now closed

Job summary

This is an exciting opportunity to support adults with Motor Neurone Disease (MND), who live in Enfield. As part of service transformation work and investment from the ICB this post has been created to work across services to provide a link between primary and secondary care, local charities, the voluntary sector and other key stakeholders in order to support high quality evidence based seamless patient care and management.

After several years of ever closer working, North Mid and Royal Free London are planning to come together as one organisation to enable them to go further and faster in improving services for patients and the health of the local community than they can achieve separately. The merger of North Mid into the RFL group is currently expected to take place on 1 January 2025, subject to NHS England and Secretary of State approval.

Main duties of the job

To lead the co-ordination of care and service development for all patients with motor neurone disease within the London Borough of Enfield. To ensure that they and their carers receive quality assured multi-disciplinary care, support and experience within agreed protocols and allocated resources, at the point of referral to a general neurologist and throughout their journey with the condition. This includes working with and co-ordinating care via a multi-disciplinary MND Care team including colleagues from neurology, respiratory, speech and language, nutrition and dietetics, occupational therapy, physiotherapy, palliative care, social care and the Motor Neurone Disease Association (MND Association).

About us

North Mid is part of North Central London integrated care system - consisting of the NHS and Local authority organisations in Camden, Islington, Barnet, Enfield and Haringey. As with other ICS's, we are working increasingly closely with partners and indeed many of our financial and performance objectives are measured at this system level. Whilst all organisations remain as standalone, statutory bodies we have an ICS infrastructure for making shared decisions and agreeing shared approaches.

We are proud of our staff and want to ensure their training allows them to provide excellent clinical care. We are also a training unit for medical students from UCL and St George's University Grenada, and for nursing and midwifery students from Middlesex and City Universities.

Take a tour of our hospital here

Date posted

24 January 2025

Pay scheme

Agenda for change

Band

Band 7

Salary

£51,883 to £58,544 a year per annum inclusive of HCAS - pro rata if LTFT

Contract

Permanent

Working pattern

Part-time

Reference number

393-NMUH-2047-A

Job locations

St Micheals primary care centre

Gater Drive

Enfield

EN2 0JB


Job description

Job responsibilities

  1. To develop expertise and resources to provide sound clinical advice where necessary and coordinate with the wider multidisciplinary team to provide a holistic and comprehensive approach to patient care for patients with MND.

2. To lead and co-ordinate MND MDT meetings

3. To provide home visits as well as clinics where patient assessments are carried out to enable appropriate interventions to be implemented, utilising the wider multidisciplinary team.

4. To monitor local provision against relevant best practice guidance, working as a colleague with other MND coordinators and neurological specialists across the London North Central Integrated Care System (ICS).

Job description

Job responsibilities

  1. To develop expertise and resources to provide sound clinical advice where necessary and coordinate with the wider multidisciplinary team to provide a holistic and comprehensive approach to patient care for patients with MND.

2. To lead and co-ordinate MND MDT meetings

3. To provide home visits as well as clinics where patient assessments are carried out to enable appropriate interventions to be implemented, utilising the wider multidisciplinary team.

4. To monitor local provision against relevant best practice guidance, working as a colleague with other MND coordinators and neurological specialists across the London North Central Integrated Care System (ICS).

Person Specification

Education and qualifications

Essential

  • Registered Nurse or HCPC registration.
  • Relevant specialist post basic programme in an area of neurology or related speciality
  • Evidence of continuing professional development.
  • Degree in Nursing/ Physiotherapy/N & D /SLT or other related clinical profession, or demonstrable experience at this level.

Desirable

  • Previous experience of formal / informal teaching of patients & staff.

Skills and abilities

Essential

  • Presentation skills.
  • Demonstrates a clear vision of the role and service.
  • Demonstrates skilled written and verbal communication skills.
  • Developed clinical assessment skills
  • Keyboard and word processing skills.

Desirable

  • Evidence of advanced or enhanced communication skills training

Experience

Essential

  • Demonstrates up to date knowledge and expertise in general nursing or physiotherapy or occupational therapy or speech and language or N & D , and parameters for onward referral.
  • Specialist knowledge of working with patients with Motor Neurone disease.
  • Experience of identifying complex needs and appropriate onward referral to optimise function, improve quality of life, and maintain safety within a patient's environment.
  • Experience of working within the community setting.

Desirable

  • Extensive detailed knowledge of impact of neurological impairment on body systems and processes.
  • Ability to recognise implications of national standards and guidelines and their influence on practice
  • Experience of identifying measures for specific clinical outcome measurement.

Personal qualities

Essential

  • Full driving licence and use of a car for travel between locations as appropriate to the patient's needs, linking with key professionals.
  • Committed to multi-professional team working and working with partners
  • Able to work autonomously and within a team
Person Specification

Education and qualifications

Essential

  • Registered Nurse or HCPC registration.
  • Relevant specialist post basic programme in an area of neurology or related speciality
  • Evidence of continuing professional development.
  • Degree in Nursing/ Physiotherapy/N & D /SLT or other related clinical profession, or demonstrable experience at this level.

Desirable

  • Previous experience of formal / informal teaching of patients & staff.

Skills and abilities

Essential

  • Presentation skills.
  • Demonstrates a clear vision of the role and service.
  • Demonstrates skilled written and verbal communication skills.
  • Developed clinical assessment skills
  • Keyboard and word processing skills.

Desirable

  • Evidence of advanced or enhanced communication skills training

Experience

Essential

  • Demonstrates up to date knowledge and expertise in general nursing or physiotherapy or occupational therapy or speech and language or N & D , and parameters for onward referral.
  • Specialist knowledge of working with patients with Motor Neurone disease.
  • Experience of identifying complex needs and appropriate onward referral to optimise function, improve quality of life, and maintain safety within a patient's environment.
  • Experience of working within the community setting.

Desirable

  • Extensive detailed knowledge of impact of neurological impairment on body systems and processes.
  • Ability to recognise implications of national standards and guidelines and their influence on practice
  • Experience of identifying measures for specific clinical outcome measurement.

Personal qualities

Essential

  • Full driving licence and use of a car for travel between locations as appropriate to the patient's needs, linking with key professionals.
  • Committed to multi-professional team working and working with partners
  • Able to work autonomously and within a team

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Certificate of Sponsorship

Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).

From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Additional information

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Certificate of Sponsorship

Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).

From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Employer details

Employer name

North Middlesex University Hospital NHS Trust

Address

St Micheals primary care centre

Gater Drive

Enfield

EN2 0JB


Employer's website

https://www.northmid.nhs.uk/ (Opens in a new tab)

Employer details

Employer name

North Middlesex University Hospital NHS Trust

Address

St Micheals primary care centre

Gater Drive

Enfield

EN2 0JB


Employer's website

https://www.northmid.nhs.uk/ (Opens in a new tab)

For questions about the job, contact:

Adult community therapies operational manager

Helen Plum

h.plum@nhs.net

07967884401

Date posted

24 January 2025

Pay scheme

Agenda for change

Band

Band 7

Salary

£51,883 to £58,544 a year per annum inclusive of HCAS - pro rata if LTFT

Contract

Permanent

Working pattern

Part-time

Reference number

393-NMUH-2047-A

Job locations

St Micheals primary care centre

Gater Drive

Enfield

EN2 0JB


Supporting documents

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