Job summary
An exciting opportunity has arisen for a dedicated Paediatric or Adult trained nurse to join our Highly Specialised NF1 Complex service, focusing on research. Saint Mary's MCS hosts this prestigious NF1 complex service, one of only two centres in the UK providing comprehensive care for both paediatric and adult patients.
The Neurofibromatosis Type 1 (NF1) service at Saint Mary's MCS is a nationally commissioned service renowned for its expertise in diagnosing and managing complex NF1 cases. This service coordinates care for patients with NF1, a disorder that predisposes individuals to benign and malignant tumours.
The service operates with a multidisciplinary team (MDT), to address the diverse needs of NF1 patients. It provides expert diagnosis, including mutation testing for unusual NF1 phenotypes, and effective monitoring to ensure the highest quality of care.
Working in this field, you contribute to advancing the understanding and treatment of NF1, a genetic disorder affecting many individuals worldwide. Your work can lead to breakthroughs that improve patient outcomes and quality of life.
NF1 research offers numerous opportunities for professional development. You can stay updated on the latest advancements in genetic research, attend relevant conferences, and participate in training sessions to enhance your skills and knowledge. By collecting and analyzing data, you help generate valuable insights that can inform future studies and lead to innovative treatments.
Main duties of the job
Clinical Trial Coordination:Manage and coordinate clinical trials related to NF1, including patient recruitment, consent, and follow-up. Ensure adherence to study protocols and regulatory guidelines.
Patient Care:Provide comprehensive care to patients enrolled in clinical trials, including monitoring their health status, administering treatments, and managing any adverse events.
Data Management:Collect, record, and maintain accurate data for clinical trials. Ensure data integrity and confidentiality in accordance with Good Clinical Practice (GCP) standards.
Collaboration:Work closely with multidisciplinary teams, including physicians, geneticists, and other healthcare professionals, to ensure the smooth operation of research studies.
Education and Training:Educate patients and their families about clinical trials, NF1, and the importance of research. Provide training and support to other healthcare staff involved in research activities.
Regulatory Compliance:Ensure all research activities comply with ethical standards, regulatory requirements, and institutional policies. Prepare and submit necessary documentation to ethics committees and regulatory bodies.
Quality Improvement: Participate in quality improvement initiatives to enhance the efficiency and effectiveness of the NF1 research program.
About us
MFT is one of the largest NHS Trusts in England with a turnover of £2.8bn & is on a different scale than most other NHS Trusts. We're creating an exceptional integrated health & social care system for the 1 million patients who rely on our services every year.
Bringing together 10 hospitals & community services from across Manchester, Trafford & beyond, we champion collaborative working & transformation, encouraging our 30,000 workforce to pursue their most ambitious goals. We set standards that other Trusts seek to emulate so you'll benefit from a scale of opportunity that is nothing short of extraordinary.
We've also created a digitally enabled organisation to improve clinical quality, patient & staff experience, operational effectiveness & driving research, and innovation through the introduction of Hive; our Electronic Patient Record system which launched in September 2022.
We're proud to be a major academic Research Centre & Education provider, providing you with a robust infrastructure to encourage and facilitate high-quality research programmes. What's more, we're excited to be embarking on our Green Plan which sets out how MFT continues to play its part in making healthcare more sustainable.
At MFT, we create and foster a culture of inclusion and belonging, provide equal opportunities for career development that are fair, open, and transparent, protecting your health and wellbeing and shaping the future of our organisation together.
Job description
Job responsibilities
To find out more about the key responsibilities and the specific skills and experience youll need, take a look at the Job Description & Person Specification attachments under the Supporting Documents heading. So that youre even more equipped to make an informed decision to apply to us, youll need to take time to read the Candidate Essentials Guide that sits with the Job Description and Person Specification. This document provides you with details about the Trust, our benefits and outlines how we care for you as you care for others. Most importantly, it also contains critical information youll need to be aware of before you submit an application form.
Diversity Matters
MFT is committed to promoting equality of opportunity, celebrating, and valuing diversity and eliminating any form of unlawful discrimination across our workforce, ensuring our people are truly representative of the communities we serve. All individuals regardless of age, disability, gender reassignment, marriage and civil partnership, pregnancy and maternity, race, religion or belief, sex and sexual orientation are encouraged to apply for this post. As an inclusive employer, we are here to support you. If you have any special requirements to help you with your application, email our team atresourcing@mft.nhs.uk.
Were looking forward to hearing from you!
Job description
Job responsibilities
To find out more about the key responsibilities and the specific skills and experience youll need, take a look at the Job Description & Person Specification attachments under the Supporting Documents heading. So that youre even more equipped to make an informed decision to apply to us, youll need to take time to read the Candidate Essentials Guide that sits with the Job Description and Person Specification. This document provides you with details about the Trust, our benefits and outlines how we care for you as you care for others. Most importantly, it also contains critical information youll need to be aware of before you submit an application form.
Diversity Matters
MFT is committed to promoting equality of opportunity, celebrating, and valuing diversity and eliminating any form of unlawful discrimination across our workforce, ensuring our people are truly representative of the communities we serve. All individuals regardless of age, disability, gender reassignment, marriage and civil partnership, pregnancy and maternity, race, religion or belief, sex and sexual orientation are encouraged to apply for this post. As an inclusive employer, we are here to support you. If you have any special requirements to help you with your application, email our team atresourcing@mft.nhs.uk.
Were looking forward to hearing from you!
Person Specification
Post registration experience
Essential
- Experience working in Neurology field
Registraton
Essential
- Currently registered with NMC
Experience
Essential
- Experience working wthin the clinical research area
Registration
Essential
- Nursing qualification Paediatric / Adult
Good clinical research practice
Essential
- Has completed or has understanding of good clinical research practice
Desirable
- is aware of GCP and will undertake when in post
Person Specification
Post registration experience
Essential
- Experience working in Neurology field
Registraton
Essential
- Currently registered with NMC
Experience
Essential
- Experience working wthin the clinical research area
Registration
Essential
- Nursing qualification Paediatric / Adult
Good clinical research practice
Essential
- Has completed or has understanding of good clinical research practice
Desirable
- is aware of GCP and will undertake when in post
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
UK Registration
Applicants must have current UK professional registration. For further information please see
NHS Careers website (opens in a new window).
Additional information
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
UK Registration
Applicants must have current UK professional registration. For further information please see
NHS Careers website (opens in a new window).
