Job summary
Previous Applicants Need Not Apply
The role of the Neuromuscular Advisor is to provide specialist, holistic support, advice and education for adults & children with neuromuscular conditions, their families and carers; in Bristol, North Somerset, South Gloucestershire, Gloucestershire, Wiltshire & Somerset.
The Advisor will promote a culture of service excellence, adopting and promoting national standards of care. They will support, enable and empower individuals with neuromuscular conditions and their carers to make informed choices about their health and other care. They will be involved and provide advice on care pathways and research regarding neuromuscular conditions at a local and national level.
The Advisor will maximise independence with the flexibility, sensitivity and forethought required to meet the specific physical, emotional, spiritual, cultural and social needs of the individual.
The advisor will work in partnership with other Specialist Neuromuscular Network staff, to contribute to the development of the service, and work in partnership with other service providers to maximise the health, independence and quality of life of people living with a neuromuscular condition. They will also liaise with the Neuromuscular Care Advisors across the UK in order to develop neuromuscular services.
At interview stage we will be asking candidates to do a presentation on "How do you think the skills you bring to the Neuromuscular Advisor role can support the patients and the Multi-Disciplinary Team?"
This vacancy is currently going through re-banding to potentially be re banded to Band 7, but there is no guarantee.
Main duties of the job
The post will involve regular contact with clinical staff, patients, carers and provide ongoing support and information for people living with a neuromuscular condition and their families/carers.
The post holder will attend specialist clinics (adult, paediatric & transition), liaise with clinicians & provide support within the clinic. The post holder will also provide education, teaching and training to patients, families/carers and other professionals about living with a neuromuscular condition.
The post holder will provide information and advice to school and workplace professionals in order that people living with a neuromuscular condition are supported in these environments.
They will offer home visits at time of diagnosis and at other times to provide specialist advice, practical and psychosocial support.
The post holder support at times of crisis, including at times of bereavement and act as an advocate assisting families to proactively plan for future needs, liaising with statutory and voluntary agencies.
The post holder will manage a patient caseload within agreed service guidelines and effectively work in partnership with other professionals.
The post holder will spend a considerable amount of time as a lone worker. They will need to follow North Bristol NHS Trust guidance on safe practice.
The post holder may be required to attend national and regional conferences.
The post holder will develop knowledge & manage records regarding the community services available.
About us
The South West Neuromuscular Operational Delivery Network (SWNODN) is a clinically driven network of key stakeholders including doctors, allied health professionals, NHS managers, commissioners, patients, carers and their families.
Our aim is to develop and establish world class and equitable care for people of all ages living with rare neuromuscular conditions in the South West of England, and to improve their quality of life and overall experience of NHS services.
As part of the team, you will be based in Southmead hospital, but work in the Childrens Hospital and Gloucester Royal to help deliver our service. There will also be travel to other outreach clinics and home visits as necessary.
Job description
Job responsibilities
The role will involve regular contact with clinical staff, patients, carers and non-statutory groups and organisations associated with neuromuscular services.
To provide ongoing support and information for people living with a neuromuscular condition and their families/carers.
To attend specialist clinics (adult, paediatric & transition), liaise with clinicians & provide support within the clinic.
To provide education, teaching and training to patients, families/carers and other professionals about living with a neuromuscular condition.
To provide a proactive service to people living with a neuromuscular condition.
To provide ongoing support and information to people living with a neuromuscular condition and their families/carers in a variety of settings e.g. home, hospital, public engagement events, etc.
To engage with and provide information and advice to school and workplace professionals in order that people living with a neuromuscular condition are supported in these environments.
To offer home visits at time of diagnosis and at other times to provide specialist advice, practical and psychosocial support.
To secure services for families as appropriate.
To facilitate and support at times of crisis, including at times of bereavement.
To act as an advocate assisting families to proactively plan for future needs, liaising with statutory and voluntary agencies.
To provide specialist information and education to enable families to make informed choices about their futures and to plan ahead and obtain the right equipment, adaptations & educational support in good time.
Manage a patient caseload within agreed service guidelines and effectively work in partnership with other professionals.
To liaise with other professionals and to raise concerns over unmet needs and areas of risk.
To identify gaps in local services relating to neuromuscular conditions and promote and champion the development of these services within specified areas
To seek and identify funding for resources on behalf of people living with a neuromuscular condition and to work towards creative/alternative resolutions regarding funding as necessary.
The post holder will be responsible for advising on the availability of clinical services.
The post holder will be expected to work as part of a team to develop service delivery.
The post holder will work with clinicians on reviews of clinical governance arrangements, the standards of care, services and outcomes for patients.
The post holder will work closely with colleagues to help develop a collaborative culture among clinicians and other professionals delivering neuromuscular services; ensuring effective dialogue between key stakeholders.
The post holder will spend a considerable amount of time as a lone worker. They will need to follow North Bristol NHS Trust guidance on safe practice.
The post holder will manage a caseload within their specific region and will be responsible for prioritising their own workload.
The post holder may be required to attend national and regional conferences.
The post holder will develop knowledge & manage records regarding the community services available.
To maintain professional registration and take part in relevant training to maintain continuing professional development.
The post holder will contribute to the development of public engagement within neuromuscular and related services.
Job description
Job responsibilities
The role will involve regular contact with clinical staff, patients, carers and non-statutory groups and organisations associated with neuromuscular services.
To provide ongoing support and information for people living with a neuromuscular condition and their families/carers.
To attend specialist clinics (adult, paediatric & transition), liaise with clinicians & provide support within the clinic.
To provide education, teaching and training to patients, families/carers and other professionals about living with a neuromuscular condition.
To provide a proactive service to people living with a neuromuscular condition.
To provide ongoing support and information to people living with a neuromuscular condition and their families/carers in a variety of settings e.g. home, hospital, public engagement events, etc.
To engage with and provide information and advice to school and workplace professionals in order that people living with a neuromuscular condition are supported in these environments.
To offer home visits at time of diagnosis and at other times to provide specialist advice, practical and psychosocial support.
To secure services for families as appropriate.
To facilitate and support at times of crisis, including at times of bereavement.
To act as an advocate assisting families to proactively plan for future needs, liaising with statutory and voluntary agencies.
To provide specialist information and education to enable families to make informed choices about their futures and to plan ahead and obtain the right equipment, adaptations & educational support in good time.
Manage a patient caseload within agreed service guidelines and effectively work in partnership with other professionals.
To liaise with other professionals and to raise concerns over unmet needs and areas of risk.
To identify gaps in local services relating to neuromuscular conditions and promote and champion the development of these services within specified areas
To seek and identify funding for resources on behalf of people living with a neuromuscular condition and to work towards creative/alternative resolutions regarding funding as necessary.
The post holder will be responsible for advising on the availability of clinical services.
The post holder will be expected to work as part of a team to develop service delivery.
The post holder will work with clinicians on reviews of clinical governance arrangements, the standards of care, services and outcomes for patients.
The post holder will work closely with colleagues to help develop a collaborative culture among clinicians and other professionals delivering neuromuscular services; ensuring effective dialogue between key stakeholders.
The post holder will spend a considerable amount of time as a lone worker. They will need to follow North Bristol NHS Trust guidance on safe practice.
The post holder will manage a caseload within their specific region and will be responsible for prioritising their own workload.
The post holder may be required to attend national and regional conferences.
The post holder will develop knowledge & manage records regarding the community services available.
To maintain professional registration and take part in relevant training to maintain continuing professional development.
The post holder will contribute to the development of public engagement within neuromuscular and related services.
Person Specification
Qualifications
Essential
- oIn possession of a professional care qualification in Nursing, Social Work, Occupational Therapy or Physiotherapy
- oSignificant experience of working with people with life limiting, life threatening or severely disabling conditions
- oKnowledge of legislation around NHS/Social Services provision and services
Desirable
- oKnowledge of current research developments in the neuromuscular field
- oKnowledge of the education system
- oKnowledge of the benefit system
Person Specification
Qualifications
Essential
- oIn possession of a professional care qualification in Nursing, Social Work, Occupational Therapy or Physiotherapy
- oSignificant experience of working with people with life limiting, life threatening or severely disabling conditions
- oKnowledge of legislation around NHS/Social Services provision and services
Desirable
- oKnowledge of current research developments in the neuromuscular field
- oKnowledge of the education system
- oKnowledge of the benefit system
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
UK Registration
Applicants must have current UK professional registration. For further information please see
NHS Careers website (opens in a new window).
Additional information
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
UK Registration
Applicants must have current UK professional registration. For further information please see
NHS Careers website (opens in a new window).
