Job summary
Working as part of the Paediatric Epilepsy and Neurodisability Service, you will provide expert nursing care, clinical leadership, and specialist support to children and young people (0-18 years) with epilepsy and neurodisability. You will work autonomously and collaboratively with community paediatricians, neurodisability consultants, and the Epilepsy & Neurodisability Nurse Specialist Team.
Main duties of the job
Your role will focus on five key areas of intervention:1. Diagnosis - supporting families through the diagnostic process and ensuring clear communication and signposting.2. Deterioration of condition - acting as the first point of contact for concerns or changes in a child's condition.3. Acute admission - ensuring continuity of care during hospital admissions and facilitating timely decision-making and discharge.4. End of life - providing compassionate support, guidance, and coordination of high-quality end-of-life care.5. Transitional care - supporting transitions between neonatal, paediatric, tertiary, and adult services.You will be an expert resource for families, carers, and professionals, delivering specialist education, contributing to service development, and ensuring evidence-based, high-quality care.
About us
The Paediatric Epilepsy & Neurodisability Service consists of:Neurodisability Medical Team
- 8 Neurodisability Clinicians
- 3 with a specialist interest in epilepsyEpilepsy & Neurodisability Nursing Team
- 1 Band 7 Lead Nurse Specialist
- 2 Band 6 Nurse SpecialistsClinical Locations
- Cheltenham General Hospital
- Gloucestershire Royal Hospital
- Community hospitals across GloucestershireClinic Types
- Dedicated epilepsy clinics (including first seizure clinics)
- Nurse-led epilepsy clinics
- Consultant neurodisability clinics supported by Nurse SpecialistsThe team works closely with acute paediatrics, community services, therapy teams, education providers, and tertiary centres.
We are a small friendly team, working Monday to Friday. We offer good home and work life balance.
Job description
Job responsibilities
Provide expert nursing advice and support for children and young people with epilepsy and/neurodisability.
- Undertake specialist assessments, critically analysing complex information to inform care planning.
- Support the diagnostic process, ensuring families receive clear, compassionate communication and appropriate signposting.
- Act as the first point of contact for families reporting deterioration or concerns.
- Liaise with ward teams and consultants during acute admissions to ensure continuity of care and timely discharge.
- Provide support and guidance in endoflife care, including involvement in Advance Care Planning and ReSPECT processes.
- Facilitate smooth transitions between services in line with Trust policy.
- Ensure clinical practice is evidencebased and aligned with national and local guidelines.
- Maintain accurate and timely documentation using Trust electronic systems.
- Work collaboratively within the multidisciplinary team, recognising and valuing the roles of all members.
- Maintain professional registration and adhere to the NMC Code at all times.
Job description
Job responsibilities
Provide expert nursing advice and support for children and young people with epilepsy and/neurodisability.
- Undertake specialist assessments, critically analysing complex information to inform care planning.
- Support the diagnostic process, ensuring families receive clear, compassionate communication and appropriate signposting.
- Act as the first point of contact for families reporting deterioration or concerns.
- Liaise with ward teams and consultants during acute admissions to ensure continuity of care and timely discharge.
- Provide support and guidance in endoflife care, including involvement in Advance Care Planning and ReSPECT processes.
- Facilitate smooth transitions between services in line with Trust policy.
- Ensure clinical practice is evidencebased and aligned with national and local guidelines.
- Maintain accurate and timely documentation using Trust electronic systems.
- Work collaboratively within the multidisciplinary team, recognising and valuing the roles of all members.
- Maintain professional registration and adhere to the NMC Code at all times.
Person Specification
Qualifications and Training
Essential
- RSCN/RN (Child) with NMC registration
- Teaching/assessing qualification.
Desirable
- Non-medical prescribing qualification or willingness to work towards
Knowledge and Skills
Essential
- Able to prioritise own workload and that of others
- Resilient and able to manage complexity
- Excellent communication and interpersonal skills
- Ability to maintain and develop standards of practice
- Strong clinical reasoning and decision-making skills
- Acts as a role model and leads by example
- Ability to supervise junior and non-registered staff
- Ability to escalate concerns appropriately
- Ability to challenge practice constructively
- Tenacity and motivation to pursue goals
- Able to work independently and prioritise workload
Desirable
- Awareness of professional issues influencing practice
- Ability to contribute to policy and guideline development
Clinical/Experience
Essential
- Experience working with children and young people with epilepsy and neurodisability
Personal Attributes
Essential
- Enthusiastic and self-aware
- Resilient under pressure
- Team focused
- Reliable, adaptable, and dependable
Desirable
Person Specification
Qualifications and Training
Essential
- RSCN/RN (Child) with NMC registration
- Teaching/assessing qualification.
Desirable
- Non-medical prescribing qualification or willingness to work towards
Knowledge and Skills
Essential
- Able to prioritise own workload and that of others
- Resilient and able to manage complexity
- Excellent communication and interpersonal skills
- Ability to maintain and develop standards of practice
- Strong clinical reasoning and decision-making skills
- Acts as a role model and leads by example
- Ability to supervise junior and non-registered staff
- Ability to escalate concerns appropriately
- Ability to challenge practice constructively
- Tenacity and motivation to pursue goals
- Able to work independently and prioritise workload
Desirable
- Awareness of professional issues influencing practice
- Ability to contribute to policy and guideline development
Clinical/Experience
Essential
- Experience working with children and young people with epilepsy and neurodisability
Personal Attributes
Essential
- Enthusiastic and self-aware
- Resilient under pressure
- Team focused
- Reliable, adaptable, and dependable
Desirable
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
UK Registration
Applicants must have current UK professional registration. For further information please see
NHS Careers website (opens in a new window).
Additional information
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
UK Registration
Applicants must have current UK professional registration. For further information please see
NHS Careers website (opens in a new window).
