Job summary
If you are a highly motivated and enthusiastic individual, then we want you! We are seeking a skilled Data Information Manager to join our dynamic team at the Great North Children's Hospital. The successful applicant will oversee data collection storage, and management processes relating to patients treated within the department of Paediatric cystic fibrosis. The successful candidate will ensure that data input adheres to and maintains the cystic fibrosis registry and Cystic Fibrosis Trust data collection.
The children's cystic fibrosis service is part of the respiratory department at the Great North Children's Hospital. We are a regional centre providing specialist care for approximately 180 children with CF across the North East and Cumbria. We care for children from birth to 16-18 years old when they transfer to adult services. The service consists of a specialist multidisciplinary team of doctors, nurses, physiotherapists, dietitians, pharmacist, physiologists, social worker and administrative staff.
- Interview Date: 19th January 2026
- 22 Hours 30 Minutes/ Week
- You will be redirected to Trac to apply for the vacancy. Please expand the job details section and read all of the information before applying for the vacancy.
NO AGENCIES PLEASE
Main duties of the job
- Oversee data collection storage, and management processes.
- Contribute to important ongoing research studies within CF
- Ensure data integrity and security across all platforms
- Develop implement data governance policies.
- Collaborate with consultants and specialist nurses to optimise data utilisation
About us
As a flexible working friendly organisation, we want to be sure that you can work in a way that is best for us and for our patients, and for you. Speak to us about how we might be able to accommodate a flexible working arrangement. If it works for the service, we will do our best to make it work for you.
With around 2 million contacts with patients every year, we deliver care from:
- Royal Victoria Infirmary (RVI)
- Freeman Hospital
- Newcastle Dental Hospital
- Cramlington Manor Walks
- Urgent treatment centres
- Newcastle Fertility Centre
- Northern Centre for Cancer Care, North Cumbria
- Northern Genetics Service
These include a range of flagship services which deliver cutting-edge care (supported by state-of-the-art diagnostic services in both radiology and pathology) and are a catalyst for innovation to support pioneering clinical practice in the NHS.
We also have offices at Regent Point in Gosforth and community sites.
Please see attached information on what Staff Benefits we have to offer at our Trust under 'Documents to download' or 'Supporting documents'.
For further information on The Newcastle upon Tyne Hospitals NHS Foundation Trust please visit: Careers | Newcastle Hospitals | NHS | Newcastle Hospitals and Newcastle Hospitals NHS Foundation Trust
Job description
Job responsibilities
If successful, you will be responsible for liaising with clinical and non-clinical professional staff for the delivery of a high standard of care. Your role will directly impact patient experience and be part of providing seamless delivery of care.
You should be self-motivated, reliable and well organised with excellent communication and interpersonal skills. You should be able to work efficiently and methodically with good attention to detail without direct supervision. The post holder should be flexible to the needs of the service with a positive and proactive attitude.
The post holder will be required to have excellent communication skills, be able to prioritise workload effectively with excellent attention to detail.
Job Purpose
- To be responsible for the collection of data relating to patients treated within the department of Paediatric Cystic Fibrosis Service. Ensuring that the data input adheres to and maintains the CF registry and CF Trust data collection requirements.
- Work with other data managers in the Paediatric directorate to respond to all requests for data required for clinical governance within the dedicated quality management system, finance and the wider Trust organisation.
- Work with the Data Manager in the Adult CF service to ensure timely responses to data queries across the whole service.
- Submit data to various registries including the UK CF registry
- Maintenance of quality and content of data input as appropriate within internal and external data bases
- To be responsible for producing reports as required and support analytical work of the business.
- Submit and present data as requested as part of the quality management programme within the Trust CF service.
- Act as a point of contact for all Paediatric CF data queries.
- Ensure that Trust policy regarding Data Protection and Information Governance is adhered to.
- To collate and enter statistical information received within GNCH, using it to produce reports as requested.
- To think creatively to develop, design or create ideas to promote GNCH and present data.
- Collect, store and present market data effectively using computer technology.
- Analyse information and evaluate results and highlight issues to Service Lead
- Within the CF clinical governance programme to provide data for, attend and present data at regular quality management meetings
- To provide data required for national targets such as the specialized service quality dashboard (SSQD)
- Co-ordinate and attend weekly MDT CF Annual Review meetings and severe asthma review meetings with minute taking
Job description
Job responsibilities
If successful, you will be responsible for liaising with clinical and non-clinical professional staff for the delivery of a high standard of care. Your role will directly impact patient experience and be part of providing seamless delivery of care.
You should be self-motivated, reliable and well organised with excellent communication and interpersonal skills. You should be able to work efficiently and methodically with good attention to detail without direct supervision. The post holder should be flexible to the needs of the service with a positive and proactive attitude.
The post holder will be required to have excellent communication skills, be able to prioritise workload effectively with excellent attention to detail.
Job Purpose
- To be responsible for the collection of data relating to patients treated within the department of Paediatric Cystic Fibrosis Service. Ensuring that the data input adheres to and maintains the CF registry and CF Trust data collection requirements.
- Work with other data managers in the Paediatric directorate to respond to all requests for data required for clinical governance within the dedicated quality management system, finance and the wider Trust organisation.
- Work with the Data Manager in the Adult CF service to ensure timely responses to data queries across the whole service.
- Submit data to various registries including the UK CF registry
- Maintenance of quality and content of data input as appropriate within internal and external data bases
- To be responsible for producing reports as required and support analytical work of the business.
- Submit and present data as requested as part of the quality management programme within the Trust CF service.
- Act as a point of contact for all Paediatric CF data queries.
- Ensure that Trust policy regarding Data Protection and Information Governance is adhered to.
- To collate and enter statistical information received within GNCH, using it to produce reports as requested.
- To think creatively to develop, design or create ideas to promote GNCH and present data.
- Collect, store and present market data effectively using computer technology.
- Analyse information and evaluate results and highlight issues to Service Lead
- Within the CF clinical governance programme to provide data for, attend and present data at regular quality management meetings
- To provide data required for national targets such as the specialized service quality dashboard (SSQD)
- Co-ordinate and attend weekly MDT CF Annual Review meetings and severe asthma review meetings with minute taking
Person Specification
Qualifications & Education
Essential
- NVQ Level 4 or equivalent qualification (A level etc) / experience
- Educated to A level standard or equivalent
Desirable
- Qualification in Service or Quality Improvement
Knowledge & Experience
Essential
- Previous Data Base experience
- Must be experienced in all aspects of Microsoft windows applications
- Knowledge of medical terminology
- Knowledge of trust policy regarding Data Protection - Caldicott Guidelines, Data Protection Act
- Previous experience of data management
Desirable
- Previous experience in a health care environment
- Knowledge of Quality or Service Improvement Systems/Tools
- Clinical coding or data inputting experience
- Knowledge of appropriate software or design concepts
Skills & Abilities
Essential
- Must possess excellent communication and interpersonal skills - able to communicate across a multi disciplinary team (both verbal and written).
- Ability to prioritise tasks and demonstrate organisational and time management skills.
- Ability to be versatile to the role
- Ability to accurately transfer data from one medium to another (using paper based and electronic data capture).
Desirable
- Ability to collate, analyse and present accurate data.
- Knowledge of eRecord
Person Specification
Qualifications & Education
Essential
- NVQ Level 4 or equivalent qualification (A level etc) / experience
- Educated to A level standard or equivalent
Desirable
- Qualification in Service or Quality Improvement
Knowledge & Experience
Essential
- Previous Data Base experience
- Must be experienced in all aspects of Microsoft windows applications
- Knowledge of medical terminology
- Knowledge of trust policy regarding Data Protection - Caldicott Guidelines, Data Protection Act
- Previous experience of data management
Desirable
- Previous experience in a health care environment
- Knowledge of Quality or Service Improvement Systems/Tools
- Clinical coding or data inputting experience
- Knowledge of appropriate software or design concepts
Skills & Abilities
Essential
- Must possess excellent communication and interpersonal skills - able to communicate across a multi disciplinary team (both verbal and written).
- Ability to prioritise tasks and demonstrate organisational and time management skills.
- Ability to be versatile to the role
- Ability to accurately transfer data from one medium to another (using paper based and electronic data capture).
Desirable
- Ability to collate, analyse and present accurate data.
- Knowledge of eRecord
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
Additional information
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
.png){kind=logo}
