University College London Hospitals NHS Foundation Trust

Clinical Nurse Specialist in Inherited White Matter Disease

The closing date is 20 March 2026

Job summary

At University College London Hospitals NHS Foundation Trust (UCLH) our success starts with you. We have a reputation as a centre of clinical excellenceAn exciting opportunity has arisen for a 0.5 FTE Band 7 Clinical Nurse Specialist to join our highly specialist Inherited White Matter Disease service based at the National Hospital for Neurology and Neurosurgery. The Inherited White Matter Disorders (IWMD) Highly Specialist Service (HSS) is a new service funded by NHS England which aims to improve diagnosis and treatment of patients with inherited white matter disorders. These are a group of rare genetic conditions that can develop at any age, from childhood to adulthood, with a range of symptoms including memory and balance problems, weakness, spasticity, continence problems and seizures. Some patients may also be affected by hearing or visual problems. The treatment of most IWMDs is symptom based and supportive, however a number of exciting clinical trials for disease modifying treatments are on the horizon.The post holder will take a major role in supporting the delivery and development of the UCLH's IWMD service. The post holder will work closely with all multi-disciplinary team members and will play an important role in the continued development and delivery of high quality care, support and management for people and families.Appropriate NMC registration is required. Applicants must have a special interest and at least/ some relevant clinical experience in this area.

Main duties of the job

We are committed to ensuring that no job applicant or employee receives less favourable treatment on the grounds of age, disability, gender reassignment, marriage or civil partnership, pregnancy or maternity, race, religion or belief, sex or sexual orientation or is disadvantaged by requirements that cannot be justified.We offer our permanent staff an interest free season ticket loan for travel, a subsidised social club including gym, free independent and confidential support for all staff, large retail discounts, cycle to work scheme and on-site accommodation to name a few... for more information on our staff benefits please see attached poster.We recognise, reward and thank colleagues by nominating them for our annual Celebrating Excellence Awards, which are funded by UCLH Charity.

We are also members of www.mytrustbenefits.co.uk/ which offers discounts on high street retail stores, offers on travel deals, and also to take advantage of cash back schemes.This vacancy may close before the current listed closing date. You are advised not to delay submitting your completed application.Please note that all correspondence regarding your application will be via email. The emails will be sent to you via TRAC.jobs and not via NHS Jobs, we encourage you to check your inbox regularly.Please note that if you have not heard from us within 3 weeks of the closing date of the advert to assume that you have not been shortlisted on this occasion.

About us

University College London Hospitals NHS Foundation Trust (UCLH) is one of the most complex NHS trusts in the UK, serving a large and diverse population. We provide academically led acute and specialist services, to people from the local area, from throughout the United Kingdom and overseas. Our vision is to deliver top-quality patient care, excellent education, and world-class research.

We provide first-class acute and specialist services across eight sites:

University College Hospital (incorporating the Elizabeth Garrett Anderson Wing)

National Hospital for Neurology and Neurosurgery

Royal National ENT and Eastman Dental Hospitals

University College Hospital Grafton Way Building

Royal London Hospital for Integrated Medicine

University College Hospital Macmillan Cancer Centre

The Hospital for Tropical Diseases

University College Hospital at Westmoreland Street

We are dedicated to the diagnosis and treatment of many complex illnesses. UCLH specialises in women's health and the treatment of cancer, infection, neurological, gastrointestinal and oral disease. It has world class support services including critical care, imaging, nuclear medicine and pathology.

Details

Date posted

06 March 2026

Pay scheme

Agenda for change

Band

Band 7

Salary

£56,276 to £63,176 a year Per Annum Inclusive of HCAS pro rata

Contract

Fixed term

Duration

12 months

Working pattern

Part-time

Reference number

309-UCLH-7566

Job locations

National Hospital for Neurology & Neurosurgery, UCLH

Queen Square

London

WC1N 3BG


Job description

Job responsibilities

For the full Person Specification and more information regarding the main responsibilities of this role, please refer to the attached Job Description.

Come and be a part of the best NHS trust in England to work for, according to our staff*

* UCLH top trust to work at in England - In the most recent NHS staff survey UCLH had the highest percentage of staff who said they would recommend us as a place to work, out of all general acute or acute/community NHS trusts in England for the third year in a row.

UCLH recognises the benefits of flexible working for staff To find out more, visit: Flexible working.

To discover more about what makes UCLH a great place to work, visit: Why Choose UCLH?

Job description

Job responsibilities

For the full Person Specification and more information regarding the main responsibilities of this role, please refer to the attached Job Description.

Come and be a part of the best NHS trust in England to work for, according to our staff*

* UCLH top trust to work at in England - In the most recent NHS staff survey UCLH had the highest percentage of staff who said they would recommend us as a place to work, out of all general acute or acute/community NHS trusts in England for the third year in a row.

UCLH recognises the benefits of flexible working for staff To find out more, visit: Flexible working.

To discover more about what makes UCLH a great place to work, visit: Why Choose UCLH?

Person Specification

Knowledge and Qualifications

Essential

  • Registered Nurse (Adult)
  • Relevant post-registration programme
  • Teaching/Assessment programme
  • Honours Degree in Nursing, research or ethics

Desirable

  • Leadership development programme
  • Management development programme
  • Completed/completing Masters Degree
  • Advanced communication skill course

Experience

Essential

  • Minimum 3 years' relevant post registration experience in neurology nursing Band 6 Level
  • Demonstrates up to date knowledge and expertise in the specialty
  • Evidence of ability to work collaboratively autonomously
  • Knowledge of key professional issues and NMC guidelines relating to professional practice
  • Able to respond appropriately to accident or untoward clinical incidents
  • Participate in and comply with UCLH, and Divisional clinical governance frameworks
  • Evidence of continuing professional development
  • Previous experience of formal & informal teaching of patients & staff
  • Skills in critical analysis and application of research to practice
  • Previous experience of developing standards, guidelines and policies

Desirable

  • Evidence of developing & leading nurse led clinics / services
  • Experience in acting as a clinical supervisor and mentor
  • Published articles / poster presentations
  • Previous experience in budgetary management

Communication

Essential

  • Keyboard and word processing skills

Personal and People Development

Essential

  • Commitment to maintaining own fitness for practice through maintaining a personal portfolio of competencies
  • Experience as a preceptor/facilitator/mentor

Specific Requirements

Essential

  • The post holder will need to be passed fit to perform full duties of the post through the occupational health with any reasonable aids and adjustments if necessary
Person Specification

Knowledge and Qualifications

Essential

  • Registered Nurse (Adult)
  • Relevant post-registration programme
  • Teaching/Assessment programme
  • Honours Degree in Nursing, research or ethics

Desirable

  • Leadership development programme
  • Management development programme
  • Completed/completing Masters Degree
  • Advanced communication skill course

Experience

Essential

  • Minimum 3 years' relevant post registration experience in neurology nursing Band 6 Level
  • Demonstrates up to date knowledge and expertise in the specialty
  • Evidence of ability to work collaboratively autonomously
  • Knowledge of key professional issues and NMC guidelines relating to professional practice
  • Able to respond appropriately to accident or untoward clinical incidents
  • Participate in and comply with UCLH, and Divisional clinical governance frameworks
  • Evidence of continuing professional development
  • Previous experience of formal & informal teaching of patients & staff
  • Skills in critical analysis and application of research to practice
  • Previous experience of developing standards, guidelines and policies

Desirable

  • Evidence of developing & leading nurse led clinics / services
  • Experience in acting as a clinical supervisor and mentor
  • Published articles / poster presentations
  • Previous experience in budgetary management

Communication

Essential

  • Keyboard and word processing skills

Personal and People Development

Essential

  • Commitment to maintaining own fitness for practice through maintaining a personal portfolio of competencies
  • Experience as a preceptor/facilitator/mentor

Specific Requirements

Essential

  • The post holder will need to be passed fit to perform full duties of the post through the occupational health with any reasonable aids and adjustments if necessary

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Certificate of Sponsorship

Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).

From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Additional information

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Certificate of Sponsorship

Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).

From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Employer details

Employer name

University College London Hospitals NHS Foundation Trust

Address

National Hospital for Neurology & Neurosurgery, UCLH

Queen Square

London

WC1N 3BG


Employer's website

https://www.uclh.nhs.uk (Opens in a new tab)

Employer details

Employer name

University College London Hospitals NHS Foundation Trust

Address

National Hospital for Neurology & Neurosurgery, UCLH

Queen Square

London

WC1N 3BG


Employer's website

https://www.uclh.nhs.uk (Opens in a new tab)

Employer contact details

For questions about the job, contact:

Consultant Nurse and Clinical Lead

Ms Daniela Rae

d.rae@nhs.net

02031087471

Details

Date posted

06 March 2026

Pay scheme

Agenda for change

Band

Band 7

Salary

£56,276 to £63,176 a year Per Annum Inclusive of HCAS pro rata

Contract

Fixed term

Duration

12 months

Working pattern

Part-time

Reference number

309-UCLH-7566

Job locations

National Hospital for Neurology & Neurosurgery, UCLH

Queen Square

London

WC1N 3BG


Supporting documents

Privacy notice

University College London Hospitals NHS Foundation Trust's privacy notice (opens in a new tab)