University College London Hospitals NHS Foundation Trust

Clinical Nurse Specialist for ME/CFS/FMS

The closing date is 17 March 2026

Job summary

The Clinical Nurse Specialist (CNS) for ME/CFS/FMS reports directly to the deputy matron for specialist services. They work alongside other professionals and experts in ME/CFS/FMS including the Clinical Lead, physicians, general manager and Allied Health Professionals.

The CNS acts as an expert resource in ME/CFS/FMS management by working closely with patients, cares, consultants, general practitioners, therapists, social services and other stakeholders across primary and secondary care. The post holder will support the continuing progression of patient care and management within the hospital setting, while promoting and maintaining independence and self-management. They will work with the specialist team to develop and implement a service that is in line with NICE guidance and which supports multi-disciplinary teams.

The CNS will support nurse-led clinics at the RLHIM contributing to the best care for people with ME/CFS/FMS. The post holder will provide both face-to-face and virtual support to patients and will independently conduct clinics to assess, review and monitor patients' progress. The CNS will be responsible for accurately recording and interpreting patient outcome measures, as well as, actively collecting and auditing data to inform service development and improvements. In addition to their clinic duties, the CNS will train and educate patients on managing their condition.

Main duties of the job

o Practice autonomously and be self-directedo Undertake assessment of individuals using a range of different assessment methods, which may include physical examination, ordering and interpreting diagnostic tests or advanced health needs assessmento Draw on a diverse range of knowledge in their decision-making to determine evidence-based therapeutic interventions; actively monitoring the effectiveness of therapeutic interventions.o Prescribe appropriately for patients and within the individual's scope of practice if a qualified independent non-medical prescriber.o To run nurse led clinics for patients.o To provide direct advice to GPs and other allied health professionals.o To assist with teaching and training of healthcare professionals on ME/CFS/FMS within the trust and outside agencies.o To assist in the provision of inpatient referrals.o Provide education to patients, families and healthcare professionals.o To be a visible presence on the hospital wards, providing information and support to patients and staff.

Continued below.

About us

University College London Hospitals NHS Foundation Trust (UCLH) is one of the most complex NHS trusts in the UK, serving a large and diverse population. We provide academically led acute and specialist services, to people from the local area, from throughout the United Kingdom and overseas. Our vision is to deliver top-quality patient care, excellent education, and world-class research.

We provide first-class acute and specialist services across eight sites:

  • University College Hospital (incorporating the Elizabeth Garrett Anderson Wing)

  • National Hospital for Neurology and Neurosurgery

  • Royal National ENT and Eastman Dental Hospitals

  • University College Hospital Grafton Way Building

  • Royal London Hospital for Integrated Medicine

  • University College Hospital Macmillan Cancer Centre

  • The Hospital for Tropical Diseases

  • University College Hospital at Westmoreland Street

We are dedicated to the diagnosis and treatment of many complex illnesses. UCLH specialises in women's health and the treatment of cancer, infection, neurological,gastrointestinaland oral disease. It has world class support services including critical care, imaging, nuclearmedicineandpathology.

Weare committed to sustainability and have pledged to become a carbon net zero health service, embedding sustainable practice throughout UCLH. We have set an ambitious target of net zero for our direct emissions by 2031 and indirect emissions by 2040.

Details

Date posted

03 March 2026

Pay scheme

Agenda for change

Band

Band 7

Salary

£56,276 to £63,176 a year per annum inclusive of HCAS

Contract

Permanent

Working pattern

Full-time

Reference number

309-UCLH-7551

Job locations

Royal London Hospital for Integrated Medicine, UCLH

60 Great Ormond Street

London

WC1N 3HR


Job description

Job responsibilities

For the full Person Specification and more informationregardingthe main responsibilities of this role, please refer to the attached Job Description.

MAIN DUTIES continued fro above:

To assist in clinical trials, audits and research into ME/CFS/FMS and future management. Provide a nurse-led telephone clinic. Assessing patient needs and requirements and acting accordingly. To contribute to the development of services for people with ME/CFS/FMS. Participate in Multidisciplinary assessment clinics. Maintain skills and experience in management of epilepsy services and facilitate the implementation of the UCLH Nursing & Midwifery strategy. To review ME/CFS/FMS nursing practice and implement appropriate changes based on research/best practice. Develop and implement Audit, Quality and Risk Management initiatives within the ME/CFS/FMS service. Participate in a programme of self-development, clinical supervision and individual performance review (IPR). Work within the guidelines established by the Nursing and Midwifery Council (NMC) including The Code and Scope of Professional Practice and all Trust guidelines. Promote and maintain effective communication.

The Royal London Hospital for Integrated Medicine (RLHIM) is a centre for evidence-based practice, education and research, specialising in chronic and complex medical conditions. Our mission is to provide a person-centred, holistic approach, including self-care, in order to help people with chronic and complex medical conditions live well and feel better. Our approach considers the whole person and their environment in the quest for optimal health and wellbeing. In order to achieve this, we provide a combination of lifestyle strategies, medical, physical and psychological treatment, as well as advice on safe and appropriate use of complementary therapies. We also deliver and encourage self-care approaches which can continue to be used by patients after discharge. All RLHIM services are outpatient-based and are staffed by experienced healthcare professionals. A list of clinical services can be found at www.uclh.nhs.uk/rlhim.

The post-holder will join the ME/CFS and Fibromyalgia service. This service provides multidisciplinary treatment pathways for adult patients with these complex, chronic medical conditions and is the largest such services in London and the South-East. The service incorporates physician care (a Specialist Physician and Specialty Doctors), occupational therapy, physiotherapy, psychology (Cognitive Behavioural Therapy, Acceptance and Committment Therapy, Trauma-focused Therapy, EMDR, Mindfulness, Autogenic Training), dietetics and Western Medical acupuncture (for chronic pain).

We welcome applications from healthcare professionals with a holistic approach and substantial experience in managing complex, chronic conditions, including an understanding of psychosocial aspects, comfortable working with multi-morbidity and polypharmacy, high-level clinical skills, person-centred approach to care, and commitment to a multidisciplinary team approach to care.

Come and be a part of the best NHS trust in England to work for, according to our staff*

*UCLH top trust to work at in England- In the most recentNHS staff surveyUCLH had the highest percentage of staff who said they would recommend us as a place to work, out of all general acute or acute/community NHS trusts in England for the third year in a row.

UCLH recognises the benefits of flexible working for staff To find out more, visit:Flexible working.

To discover more about what makes UCLHa great placeto work, visit:Why Choose UCLH?

Job description

Job responsibilities

For the full Person Specification and more informationregardingthe main responsibilities of this role, please refer to the attached Job Description.

MAIN DUTIES continued fro above:

To assist in clinical trials, audits and research into ME/CFS/FMS and future management. Provide a nurse-led telephone clinic. Assessing patient needs and requirements and acting accordingly. To contribute to the development of services for people with ME/CFS/FMS. Participate in Multidisciplinary assessment clinics. Maintain skills and experience in management of epilepsy services and facilitate the implementation of the UCLH Nursing & Midwifery strategy. To review ME/CFS/FMS nursing practice and implement appropriate changes based on research/best practice. Develop and implement Audit, Quality and Risk Management initiatives within the ME/CFS/FMS service. Participate in a programme of self-development, clinical supervision and individual performance review (IPR). Work within the guidelines established by the Nursing and Midwifery Council (NMC) including The Code and Scope of Professional Practice and all Trust guidelines. Promote and maintain effective communication.

The Royal London Hospital for Integrated Medicine (RLHIM) is a centre for evidence-based practice, education and research, specialising in chronic and complex medical conditions. Our mission is to provide a person-centred, holistic approach, including self-care, in order to help people with chronic and complex medical conditions live well and feel better. Our approach considers the whole person and their environment in the quest for optimal health and wellbeing. In order to achieve this, we provide a combination of lifestyle strategies, medical, physical and psychological treatment, as well as advice on safe and appropriate use of complementary therapies. We also deliver and encourage self-care approaches which can continue to be used by patients after discharge. All RLHIM services are outpatient-based and are staffed by experienced healthcare professionals. A list of clinical services can be found at www.uclh.nhs.uk/rlhim.

The post-holder will join the ME/CFS and Fibromyalgia service. This service provides multidisciplinary treatment pathways for adult patients with these complex, chronic medical conditions and is the largest such services in London and the South-East. The service incorporates physician care (a Specialist Physician and Specialty Doctors), occupational therapy, physiotherapy, psychology (Cognitive Behavioural Therapy, Acceptance and Committment Therapy, Trauma-focused Therapy, EMDR, Mindfulness, Autogenic Training), dietetics and Western Medical acupuncture (for chronic pain).

We welcome applications from healthcare professionals with a holistic approach and substantial experience in managing complex, chronic conditions, including an understanding of psychosocial aspects, comfortable working with multi-morbidity and polypharmacy, high-level clinical skills, person-centred approach to care, and commitment to a multidisciplinary team approach to care.

Come and be a part of the best NHS trust in England to work for, according to our staff*

*UCLH top trust to work at in England- In the most recentNHS staff surveyUCLH had the highest percentage of staff who said they would recommend us as a place to work, out of all general acute or acute/community NHS trusts in England for the third year in a row.

UCLH recognises the benefits of flexible working for staff To find out more, visit:Flexible working.

To discover more about what makes UCLHa great placeto work, visit:Why Choose UCLH?

Person Specification

Knowledge and Qualifications

Essential

  • Registered Nurse
  • Masters level qualification or working towards
  • Teaching in the Clinical Setting Course or equivalent

Desirable

  • Post Registration Neuro Science Nursing course or equivalent
  • Completion of a recognised Non-Medical Prescriber Course

Experience

Essential

  • Demonstrate relevant experience in same specialty at Band 6 or above
  • Demonstrates up to date knowledge and expertise in the specialty
  • Evidence of ability to work collaboratively and autonomously
  • Knowledge of key professional issues and NMC guidelines relating to professional practice
  • Experience in delivering evidence based practice
  • Exercise independent clinical judgment within framework of agreed protocols
  • Experience in teaching members of the multidisciplinary team and responding to learning needs
  • Previous experience in audit and evaluation of practice / services

Skills and Abilities

Essential

  • Able to organise and prioritise own workload and that of others
  • Skills in critical analysis and application of research to practice
  • Proven competencies in clinical skills
  • Ability to work across organisational and professional boundaries
  • Demonstrates understanding of the importance of working as part of a multidisciplinary team
  • Understanding of relevant national strategy / policy and how this relates to the service
  • Ability to initiate, sustain and evaluate change

Communication

Essential

  • Communicates effectively verbally, in writing and in electronic formats
  • Communicates with patients and carers in an empathetic manner
  • Demonstrates understanding of good practice in Customer Care

Personal and People Development

Essential

  • Demonstrates evidence of professional development in line with KSF
  • Maintains updated Portfolio
  • Demonstrates an awareness of the role of preceptor/facilitator
  • Reflective in Practice
  • Demonstrates evidence of ability to educate others

Responsibilities towards promoting Equality Diversity and Inclusion

Essential

  • Demonstratable understanding of the Equality, Diversity, and Inclusion

Specific Requirements

Desirable

  • Flexible approach to shift pattern
Person Specification

Knowledge and Qualifications

Essential

  • Registered Nurse
  • Masters level qualification or working towards
  • Teaching in the Clinical Setting Course or equivalent

Desirable

  • Post Registration Neuro Science Nursing course or equivalent
  • Completion of a recognised Non-Medical Prescriber Course

Experience

Essential

  • Demonstrate relevant experience in same specialty at Band 6 or above
  • Demonstrates up to date knowledge and expertise in the specialty
  • Evidence of ability to work collaboratively and autonomously
  • Knowledge of key professional issues and NMC guidelines relating to professional practice
  • Experience in delivering evidence based practice
  • Exercise independent clinical judgment within framework of agreed protocols
  • Experience in teaching members of the multidisciplinary team and responding to learning needs
  • Previous experience in audit and evaluation of practice / services

Skills and Abilities

Essential

  • Able to organise and prioritise own workload and that of others
  • Skills in critical analysis and application of research to practice
  • Proven competencies in clinical skills
  • Ability to work across organisational and professional boundaries
  • Demonstrates understanding of the importance of working as part of a multidisciplinary team
  • Understanding of relevant national strategy / policy and how this relates to the service
  • Ability to initiate, sustain and evaluate change

Communication

Essential

  • Communicates effectively verbally, in writing and in electronic formats
  • Communicates with patients and carers in an empathetic manner
  • Demonstrates understanding of good practice in Customer Care

Personal and People Development

Essential

  • Demonstrates evidence of professional development in line with KSF
  • Maintains updated Portfolio
  • Demonstrates an awareness of the role of preceptor/facilitator
  • Reflective in Practice
  • Demonstrates evidence of ability to educate others

Responsibilities towards promoting Equality Diversity and Inclusion

Essential

  • Demonstratable understanding of the Equality, Diversity, and Inclusion

Specific Requirements

Desirable

  • Flexible approach to shift pattern

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Certificate of Sponsorship

Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).

From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Additional information

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Certificate of Sponsorship

Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).

From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Employer details

Employer name

University College London Hospitals NHS Foundation Trust

Address

Royal London Hospital for Integrated Medicine, UCLH

60 Great Ormond Street

London

WC1N 3HR


Employer's website

https://www.uclh.nhs.uk (Opens in a new tab)

Employer details

Employer name

University College London Hospitals NHS Foundation Trust

Address

Royal London Hospital for Integrated Medicine, UCLH

60 Great Ormond Street

London

WC1N 3HR


Employer's website

https://www.uclh.nhs.uk (Opens in a new tab)

Employer contact details

For questions about the job, contact:

Clinical Nurse Specialist – ME/CFS/FMS service

Kathy Sullivan

kathy.sullivan@nhs.net

Details

Date posted

03 March 2026

Pay scheme

Agenda for change

Band

Band 7

Salary

£56,276 to £63,176 a year per annum inclusive of HCAS

Contract

Permanent

Working pattern

Full-time

Reference number

309-UCLH-7551

Job locations

Royal London Hospital for Integrated Medicine, UCLH

60 Great Ormond Street

London

WC1N 3HR


Supporting documents

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