Leeds Teaching Hospitals

Family and Bereavement Support Worker (XR07)

The closing date is 31 August 2025

Job summary

An exciting opportunity has arisen for a Family and Bereavement Support Worker in the brand new Rob Burrow Centre for MND at Seacroft Hospital.

This new post is for provision of whole family support service to people with Motor Neurone Disease and their families. This includes bereavement support to children and adults and will enhance the continuity of care across the city of Leeds.

Ourideal candidate will have excellent communication and organisational skills and a passion for delivering the highest standard of care. You will be compassionate and empathetic and have knowledge of MND and bereavement support. You're not only a team player but also able to work and think independently. Previous experience in a similar role is desirable but not mandatory.

You must have a clean current driving licence and access to a vehicle.

The post is 0.6 WTE (3 days - 24 hours per week) This is currently a fixed term role for 4 years but we expect this to be extended.

For further information or to come & meet the team, please contact Katie Hodge on0113 3923536or via email on katiehodge@nhs.net

Main duties of the job

Main Duties of this role are listed below, but please see job description for full details

The post holder will be responsible for leading and enhancing our service to provide a tailored whole family support service to people with Motor Neurone disease and their families.

To undertake assessments of people and families independently to establish their emotional, social and spiritual needs and support them.

  • To support whole families with benefit applications and help them to link into services available such as through the MND Association welfare benefits service.
  • Provide bereavement support to whole families of those who have died from MND.
  • Perform carers assessments, help families identify their role as a carer and support them.
  • Lead on the development of links with other relevant family support workers to enhance the continuity and offer for people with MND across the city.
  • Lead on the provision of education and training to the wider team and external partners regarding whole family and bereavement support.
  • Lead on the development and implementation of innovative approaches to improving the care and support offered to children, young people and families affected by MND.
  • Enhance collaboration with other family support workers in the area
  • Line Manage the Family Support Workers and take management responsibility for their personal development and performance review.

About us

This post is for the new Rob Burrow Centre for Motor Neurone Disease and is based at Seacroft Hospital (Leeds Teaching Hospitals NHS Trust). The candidate will also provide support for patients admitted to wards at Leeds General Infirmary and St James's Hospital.

Leeds Teaching Hospitals Trust is one of the largest teaching hospital Trusts in Europe with access to leading clinical expertise and medical technology. We care for people from all over the country, as well as the 800,000 residents of Leeds. The Trust has a budget of £1 billion and employs 17,000 staff.

The Rob Burrow Centre is led by Dr Agam Jung, Director, Dr Shaun Foo, Co-director and is supported by a Centre Manager, 3 MND specialist nurses and multi-disciplinary team, including sub specialities e.g. respiratory and gastro-entrology.

The Centre comes under the department of Neurology, which is part of the Neurosciences CSU. Mr Robert Rathbone is the General Manager of the CSU, Dr Jonathan Bilmen is the Clinical Director and Mr Robin Darby is the Head of Nursing. Dr Maruthi Vinjam is the Clinical Lead for Neurology.

Details

Date posted

24 July 2025

Pay scheme

Agenda for change

Band

Band 7

Salary

£47,810 to £54,710 a year Pro rata

Contract

Fixed term

Duration

4 years

Working pattern

Part-time

Reference number

C9298-25-0091

Job locations

Seacroft Hospital

York Road

Leeds

LS14 6UH


Job description

Job responsibilities

JOB DESCRIPTION

The MND care centre provides a co-ordinated interdisciplinary service to over 90 patients in Leeds and the surrounding area. The post holder will join the MND Association Care centre team currently responsible for this client group and must be able to work closely with them. Attendance at clinics and team meetings on a Thursday afternoon is an important part of this role.

Work may take place in hospital settings or in the patients home, so the ability to travel between locations is a requirement of this role.

Providing a therapeutic and safe environment for patients and families to discuss their problems, be it emotional, financial, or spiritual is key to providing holistic patient centred care and this role is intended to support and complement the existing support structures in place.

This role requires advanced leadership abilities, educational skills and a commitment to service improvement, staff development andmanagement of resources in line with allocated budgets.

Key relationships will be with the other social workers, family support workers, the care centre co-ordinator, medical staff, dietician, speech and language therapist and MND Associations Community Support Coordinator and Service Development Manager.

The post holder will be responsible for leading and enhancing our service offer to provide a tailored whole family support service to people with Motor Neurone disease and their families.

To undertake assessments of people and families independently to establish their emotional, social and spiritual needs and support them with this.

To support whole families with benefit applications and help them to link into services available such as through the MND Association welfare benefits service.

To perform carers assessments and help families to identify their role as a carer and support them in this.

To lead on the development of links with other relevant family support workers to enhance the continuity and offer for people with MND across the city and over time, West Yorkshire-wide.

Lead on the provision of education and training to the wider team and external partners regarding whole family and bereavement support.

Lead on the development and implementation of innovative approaches to improving the care and support offered to children, young people and families affected by MND.

Provide emotional support to patients and whole families of patients with Motor Neurone disease.

Provide bereavement support to whole families of those who have died from Motor Neurone disease.

To enhance collaboration with other family support workers in the area (e.g. in local hospices)

Line Manage the Family Support Workers and take management responsibility for their personal development and performance review.

Take a lead on training of NHS staff and other health & social care professionals to raise awareness of the needs of children, young people and families affected by MND.

To be professional and legally responsible and accountable for all aspects of your own practice relating to the assessment and treatment of people in your care undertaking clinical duties as an autonomous practitioner.

To provide a therapeutic environment to enable people with MND and their and carers/family members to talk about their feelings/experiences of living feelings/experiences of living with MND.

Using advanced analytical skills and understanding of MND to formulateindividualised management and treatment plans.

To undertake carers assessments and provide relevant support to families, Band 6 FSWs and other professionals.

To assess and communicate with people regarding their entitlement to benefits and liaise with appropriate bodies to assist with this and offer guidance/support to other members of the team

To advise on support regarding advance care planning including lasting power of attorney and offer support to Band 6 FSWs around this

To provide support to informal carers and address their needs as appropriate

Use a range of verbal and non-verbal communication tools to communicate effectively with people to progress treatment and rehabilitation programmes. This will include people who may have difficulties in understanding, communication or have challenging behaviour. Work with MND Association and other health colleagues to ensure that all knowledge of communication aids is up to date and that of your team

Ability to work in a stressful environment imparting complex information regarding poor rehabilitation prognosis daily.

Ability to deal effectively with emotional and/or challenging people and / or carers daily - this will necessitate the use of developed communications skills e.g. the ability to negotiate, motivate and reassure and also to support staff under your management through this

Assess patient understanding of treatment proposals, gain valid informedconsent and have the knowledge to work within a legal framework with people who lack capacity to consent to treatment.

To ensure a high standard of clinical care for the people under your management and support more junior staff to do likewise.

To represent the family support team at MDT meetings and ensure the availability of FSWs at those meetings

To lead informal training to wider care team regarding the role and purpose of family and bereavement support.

To effectively communicate complex clinical information with people and carers to maximise their independence and quality of life

To lead on education to the local health economy on the role of family and bereavement support for people with MND.

Manage the education needs of those under your management to ensure that they have all the necessary skills and knowledge to fulfil their roles.

Ensure up to date and accurate knowledge of the grants available from MND Association and other partners understand the relevant criteria and ensure that any grants requests made are appropriate and a good use of charitable funds.

Maintain and develop current knowledge of evidence-based practice in this specialist clinical field and manage and ensure this is also done by those that you manage through regular supervision and support

As leader within the clinical team you will be required to ensure that you implement policy and service development changes.

To be responsible for maintaining own competency to practice through continued professional development activities and maintain a portfolio which reflects your own personal development.

To communicate effectively and work collaboratively with medical, nursing and therapy colleagues to ensure delivery of a co-ordinated multidisciplinary service.This will include case conferences, ward rounds and discharge planning as appropriate.

To participate in the staff appraisal scheme as an appraise and appraiser and be responsible for complying with your agreed personal development programmes to meet set knowledge and competencies.

To regularly undertake the measurement and evaluation of your work, and that of those under your management, and current practices through the use of evidence-based practice projects, audit and outcome measures, either individually or with colleagues. Make recommendations for change as appropriate.

To demonstrate an understanding of clinical governance and risk management and apply to work situation.

To maintain own continuing professional development (CPD) by keeping abreast of any new trends and developments, incorporating them as necessary into your work.

To regularly undertake the collection of data for use in service and research projects. To undertake research into specific areas of clinical practice and service delivery using a range of research methodologies as part of MDT audit and departmental research initiatives making recommendations for change as appropriate.

Identify and lead staff under your management in the implementation innovative ideas

To be responsible for a designated area of work and staff as agreed with the directors of the MND care centre.

To decide on a daily basis the priorities of your own work area and those of the team who are under your management

To maintain accurate, comprehensive and up-to-date documentation, in line with legal and departmental requirements and communicate assessment and treatment results to the appropriate disciplines in the form of verbal/written reports/letters.

To be actively involved in the collection of appropriate data and statistics for the use of the department.

To be aware of Health and Safety aspects of your work and implement any policies, which may be required to improve the safety of your work area, including your prompt recording and reporting of accidents to senior staff, and ensuring that equipment use is safe.

To comply with the organisational and departmental policies and procedures and to be actively involved in reviewing, updating and implementing as appropriate including those policies and procedures that will impact beyond your immediate department and / or profession.

To undertakes any other duties that might be considered appropriate by the MND care centre directors.To be responsible for ensuring the effective selection and use of all treatment resources available both in the department and on the wards.

To be responsible for the line management and supervision of Band 6 FSWs within the MND care Centre team and ensure that they have the relevant supervision and line management in line with expectations of the Trust and MND Care Centre Directors.

Job description

Job responsibilities

JOB DESCRIPTION

The MND care centre provides a co-ordinated interdisciplinary service to over 90 patients in Leeds and the surrounding area. The post holder will join the MND Association Care centre team currently responsible for this client group and must be able to work closely with them. Attendance at clinics and team meetings on a Thursday afternoon is an important part of this role.

Work may take place in hospital settings or in the patients home, so the ability to travel between locations is a requirement of this role.

Providing a therapeutic and safe environment for patients and families to discuss their problems, be it emotional, financial, or spiritual is key to providing holistic patient centred care and this role is intended to support and complement the existing support structures in place.

This role requires advanced leadership abilities, educational skills and a commitment to service improvement, staff development andmanagement of resources in line with allocated budgets.

Key relationships will be with the other social workers, family support workers, the care centre co-ordinator, medical staff, dietician, speech and language therapist and MND Associations Community Support Coordinator and Service Development Manager.

The post holder will be responsible for leading and enhancing our service offer to provide a tailored whole family support service to people with Motor Neurone disease and their families.

To undertake assessments of people and families independently to establish their emotional, social and spiritual needs and support them with this.

To support whole families with benefit applications and help them to link into services available such as through the MND Association welfare benefits service.

To perform carers assessments and help families to identify their role as a carer and support them in this.

To lead on the development of links with other relevant family support workers to enhance the continuity and offer for people with MND across the city and over time, West Yorkshire-wide.

Lead on the provision of education and training to the wider team and external partners regarding whole family and bereavement support.

Lead on the development and implementation of innovative approaches to improving the care and support offered to children, young people and families affected by MND.

Provide emotional support to patients and whole families of patients with Motor Neurone disease.

Provide bereavement support to whole families of those who have died from Motor Neurone disease.

To enhance collaboration with other family support workers in the area (e.g. in local hospices)

Line Manage the Family Support Workers and take management responsibility for their personal development and performance review.

Take a lead on training of NHS staff and other health & social care professionals to raise awareness of the needs of children, young people and families affected by MND.

To be professional and legally responsible and accountable for all aspects of your own practice relating to the assessment and treatment of people in your care undertaking clinical duties as an autonomous practitioner.

To provide a therapeutic environment to enable people with MND and their and carers/family members to talk about their feelings/experiences of living feelings/experiences of living with MND.

Using advanced analytical skills and understanding of MND to formulateindividualised management and treatment plans.

To undertake carers assessments and provide relevant support to families, Band 6 FSWs and other professionals.

To assess and communicate with people regarding their entitlement to benefits and liaise with appropriate bodies to assist with this and offer guidance/support to other members of the team

To advise on support regarding advance care planning including lasting power of attorney and offer support to Band 6 FSWs around this

To provide support to informal carers and address their needs as appropriate

Use a range of verbal and non-verbal communication tools to communicate effectively with people to progress treatment and rehabilitation programmes. This will include people who may have difficulties in understanding, communication or have challenging behaviour. Work with MND Association and other health colleagues to ensure that all knowledge of communication aids is up to date and that of your team

Ability to work in a stressful environment imparting complex information regarding poor rehabilitation prognosis daily.

Ability to deal effectively with emotional and/or challenging people and / or carers daily - this will necessitate the use of developed communications skills e.g. the ability to negotiate, motivate and reassure and also to support staff under your management through this

Assess patient understanding of treatment proposals, gain valid informedconsent and have the knowledge to work within a legal framework with people who lack capacity to consent to treatment.

To ensure a high standard of clinical care for the people under your management and support more junior staff to do likewise.

To represent the family support team at MDT meetings and ensure the availability of FSWs at those meetings

To lead informal training to wider care team regarding the role and purpose of family and bereavement support.

To effectively communicate complex clinical information with people and carers to maximise their independence and quality of life

To lead on education to the local health economy on the role of family and bereavement support for people with MND.

Manage the education needs of those under your management to ensure that they have all the necessary skills and knowledge to fulfil their roles.

Ensure up to date and accurate knowledge of the grants available from MND Association and other partners understand the relevant criteria and ensure that any grants requests made are appropriate and a good use of charitable funds.

Maintain and develop current knowledge of evidence-based practice in this specialist clinical field and manage and ensure this is also done by those that you manage through regular supervision and support

As leader within the clinical team you will be required to ensure that you implement policy and service development changes.

To be responsible for maintaining own competency to practice through continued professional development activities and maintain a portfolio which reflects your own personal development.

To communicate effectively and work collaboratively with medical, nursing and therapy colleagues to ensure delivery of a co-ordinated multidisciplinary service.This will include case conferences, ward rounds and discharge planning as appropriate.

To participate in the staff appraisal scheme as an appraise and appraiser and be responsible for complying with your agreed personal development programmes to meet set knowledge and competencies.

To regularly undertake the measurement and evaluation of your work, and that of those under your management, and current practices through the use of evidence-based practice projects, audit and outcome measures, either individually or with colleagues. Make recommendations for change as appropriate.

To demonstrate an understanding of clinical governance and risk management and apply to work situation.

To maintain own continuing professional development (CPD) by keeping abreast of any new trends and developments, incorporating them as necessary into your work.

To regularly undertake the collection of data for use in service and research projects. To undertake research into specific areas of clinical practice and service delivery using a range of research methodologies as part of MDT audit and departmental research initiatives making recommendations for change as appropriate.

Identify and lead staff under your management in the implementation innovative ideas

To be responsible for a designated area of work and staff as agreed with the directors of the MND care centre.

To decide on a daily basis the priorities of your own work area and those of the team who are under your management

To maintain accurate, comprehensive and up-to-date documentation, in line with legal and departmental requirements and communicate assessment and treatment results to the appropriate disciplines in the form of verbal/written reports/letters.

To be actively involved in the collection of appropriate data and statistics for the use of the department.

To be aware of Health and Safety aspects of your work and implement any policies, which may be required to improve the safety of your work area, including your prompt recording and reporting of accidents to senior staff, and ensuring that equipment use is safe.

To comply with the organisational and departmental policies and procedures and to be actively involved in reviewing, updating and implementing as appropriate including those policies and procedures that will impact beyond your immediate department and / or profession.

To undertakes any other duties that might be considered appropriate by the MND care centre directors.To be responsible for ensuring the effective selection and use of all treatment resources available both in the department and on the wards.

To be responsible for the line management and supervision of Band 6 FSWs within the MND care Centre team and ensure that they have the relevant supervision and line management in line with expectations of the Trust and MND Care Centre Directors.

Person Specification

Experience

Essential

  • Extensive knowledge of bereavement and whole family support work in the context of life limiting conditions
  • Working knowledge of current professional issues and those influencing the NHS
  • Standards of professional practice
  • Extensive knowledge of the relevant legal frameworks affecting people, children, young people and families affected by MND.
  • Demonstrate an awareness and understanding of NHS financial management.

Desirable

  • Experience of working in either the NHS or social care.

Behaviour/Skills

Essential

  • Ability to communicate effectively both verbally and in writing within a unit and multi professional team.
  • Ability to prioritise, organise and allocate workload.
  • Ability to teach, supervise and assess qualified, unqualified staff and students.
  • Time management skills
  • Clinical leadership
  • Able to develop collaborative individualised goals and objectives with people and carers resulting in shared treatment plans

Desirable

  • Basic IT skills

Practical Skills

Essential

  • Effective team leader and team player with the ability to work flexibly in a diverse and highly demanding organisation
  • Flexible, adaptable, capable of lateral thinking.
  • Ability to fulfil Occupational Health requirements for the post.

Qualifications

Essential

  • Degree or equivalent in a relevant area including social work, youth work, teaching, nursing etc.
  • Attendance on relevant post graduate courses

Desirable

  • Previous experience in a similar role and knowledge of motor neurone disease.
Person Specification

Experience

Essential

  • Extensive knowledge of bereavement and whole family support work in the context of life limiting conditions
  • Working knowledge of current professional issues and those influencing the NHS
  • Standards of professional practice
  • Extensive knowledge of the relevant legal frameworks affecting people, children, young people and families affected by MND.
  • Demonstrate an awareness and understanding of NHS financial management.

Desirable

  • Experience of working in either the NHS or social care.

Behaviour/Skills

Essential

  • Ability to communicate effectively both verbally and in writing within a unit and multi professional team.
  • Ability to prioritise, organise and allocate workload.
  • Ability to teach, supervise and assess qualified, unqualified staff and students.
  • Time management skills
  • Clinical leadership
  • Able to develop collaborative individualised goals and objectives with people and carers resulting in shared treatment plans

Desirable

  • Basic IT skills

Practical Skills

Essential

  • Effective team leader and team player with the ability to work flexibly in a diverse and highly demanding organisation
  • Flexible, adaptable, capable of lateral thinking.
  • Ability to fulfil Occupational Health requirements for the post.

Qualifications

Essential

  • Degree or equivalent in a relevant area including social work, youth work, teaching, nursing etc.
  • Attendance on relevant post graduate courses

Desirable

  • Previous experience in a similar role and knowledge of motor neurone disease.

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Additional information

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Employer details

Employer name

Leeds Teaching Hospitals

Address

Seacroft Hospital

York Road

Leeds

LS14 6UH


Employer's website

https://www.leedsth.nhs.uk/ (Opens in a new tab)


Employer details

Employer name

Leeds Teaching Hospitals

Address

Seacroft Hospital

York Road

Leeds

LS14 6UH


Employer's website

https://www.leedsth.nhs.uk/ (Opens in a new tab)


Employer contact details

For questions about the job, contact:

Matron

Katie Hodge

katiehodge@nhs.net

01133923536

Details

Date posted

24 July 2025

Pay scheme

Agenda for change

Band

Band 7

Salary

£47,810 to £54,710 a year Pro rata

Contract

Fixed term

Duration

4 years

Working pattern

Part-time

Reference number

C9298-25-0091

Job locations

Seacroft Hospital

York Road

Leeds

LS14 6UH


Supporting documents

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