Patient and Public Involvement Lead

Job description

Job responsibilities

Main Duties and Responsibilities Strategic Leadership and Development

In collaboration with public members and staff, lead on the development and implementation of the CRF PPIE and EDI long-term strategies. Develop, design, and coordinate all PPIE and EDI projects arising from the strategies, with the responsibility to ensure they are delivered to time, target, and budget.

Effectively embed the principles of the Trust and Research and Development (R&D) strategies, and the EDI Roadmap to Inclusion in the CRF PPIE and EDI long-term strategies and associated projects.

Develop appropriate and evidence-based methods for collecting and acting upon feedback about PPIE and EDI projects and events.

Positively promote the lessons learned from feedback and complaints about PPIE and EDI projects; draw on best practice locally and nationally to improve the day-to-day running of the CRF.

Lead the development and implementation of Policies, Guidance Documents, and Standard Operating Procedures (SOPs) related to PPIE and EDI in research at the CRF.

Be trained and lead on audits as requested by the CRF Quality Assurance Manager.

Support the CRF Manager and Director in developing PPIE and EDI plans to align with the National Institute for Health and Care Research (NIHR) and other national priorities and strategies as these change and develop.

Support the CRF Manager and Director to include questions in CRF application forms about PPIE and EDI to ensure researchers have considered stakeholders views when designing their research and have considered the diversity of their target population for recruitment.

The post holder will not hold any clinical responsibilities.

Build relationships with diverse public members within the CRF and the Trust from a wide variety of backgrounds and specialities. The post holder will take personal and professional responsibility for ensuring they are up to date on national guidance and policies related to the Equality Act, protected characteristics, and inclusive language and practices.

Display a positive, respectful, and welcoming manner when interacting with public members, demonstrating the Trust Values of being a Kind and Respectful Team.

Assist public members and visitors to the CRF in a reasonable way, ensuring their experience is positive and that they have a known and approachable contact for queries, concerns, or complaints.

Ensure public members have the opportunity to actively contribute to a range of involvement opportunities and are meaningfully contributing to the EDI agenda.

Build relationships with researchers, patient organisations/charities, and GPs to develop and communicate involvement opportunities.

Support and encourage constructive conversations between researchers and public members to ensure power is shared in decision making, and one group is not favoured over the other.

Develop and maintain a PPIE and EDI database including stakeholder contact details and up-to-date impact case studies.

Design and implement appropriate evidence-based mechanisms for public members to be kept informed of the impact their involvement has made, and to foster meaningful and respectful long-term relationships and partnerships.

Lead the development and implementation of Equality Impact Assessments (EIA) for PPIE and staff group meetings and events to ensure no groups are disadvantaged from attending or actively participating.

Responsibility for Delivering Training and Development Opportunities

Support the development of the PPIE group and CRF staff, identifying their specific and individual training needs in PPIE and EDI via quantitative and qualitative evaluations.

Develop and provide specialised training for public members on relevant PPIE topics (such as co-production) based on the post-holders specialist knowledge gained in their academic and/or professional PPIE experience.

Build capacity and skills amongst CRF staff and researchers by leading on providing in-house and bespoke training on enhancing public involvement in the design, setting up, and management of research projects and core EDI topics, such as cultural intelligence.

Signpost public members and staff to relevant external national training or resources as required.

Signpost researchers and CRF staff to the NIHR Centre for Engagement and Dissemination Resources as appropriate. Work closely with Kings Health Partners (KHP) PPIE staff to ensure a coordinated approach to staff queries regarding external training and support.

Support researchers and CRF staff to secure funding bids related to PPIE and EDI in research through the involvement and engagement of public members and via the post holders specialist expertise.

Develop and maintain an accessible library of PPIE and EDI resources, training, and planning materials to be hosted on the CRF website.

Embed the principles of PPIE and EDI in all communication initiatives.

Work with public members and staff members to co-create content for the biannual PPIE newsletter and the CRF website (e.g., in the form of patient voice blogs and videos).

Regularly meet with members of the Trusts EDI Team to ensure alignment between Trust and EDI strategies and reporting.

Collaborate with counterparts at other CRFs (e.g. Guys and St. Thomas and St. Georges) to co-host events such as Knowledge Exchange Events and Dragons Dens where public members provide immediate verbal input on projects.

Liaise with external PPIE groups and explore alternative methods to engage the interest and involvement of patients, carers, and family members.

Build pivotal relationships with the NIHR Involvement and Inclusion Team, ensuring that the CRF aligns with its aims and objectives.

Take an active leadership role in relevant PPIE in research national staff networks, including those at Kings Health Partners (KHP) and the UKCRF Network. Participate in projects arising from the groups and communicate these outputs to public members and CRF staff in an engaging and motivational way.

More information can be found in the Job Description

Person Specification

Education and Qualifications

Essential

• Educated to degree level or above
• Post graduate qualification, working towards a Masters or equivalent experience
• Experience of Continuing Professional Development

Desirable

• Relevant qualification/training in working with patients, volunteers and/or communities under-represented in research
• Familiar with Good Clinical Practice & Certification

Knowledge and Experience

Essential

• Significant experience working in a charity, healthcare, or research environment
• Significant PPIE experience, or experience working with and supporting volunteers or patients
• Experience in planning and delivering PPIE projects and activities
• Experience in designing and facilitating workshops and/or training sessions
• Experience of writing documents and communication materials for PPIE audiences
• Experience of contributing to reports for internal and external stakeholders and funders

Desirable

• Experience of contributing to reports for internal and external stakeholders and funders
• Experience of managing and maintaining website content
• Line management and performance management experience

Skills and Competencies

Essential

• Knowledge of PPIE methodologies and benefits and challenges of implementation
• Knowledge of research methodologies, quality, standard setting, benchmarking/audit
• Articulate with advanced written and oral communication skills
• Excellent planning and organisational skills
• Excellent IT skills including Word, Excel, PowerPoint, website platforms and patient database systems

Desirable

• Discussion/focus group moderation and facilitation skills
• Knowledge of health inequalities

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Certificate of Sponsorship

Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).

From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).

Employer details

Employer name

King's College Hospital NHS Foundation Trust

Address

KCH Denmark Hill

Denmark Hill

London

SE5 9RS

Employer's website

https://www.kch.nhs.uk/ (Opens in a new tab)