Job summary
- To support the service dedicated to the care of children and young people with major haemoglobinopathies and other long term non-malignant haematological condition
- The post holder will work with the network multidisciplinary team to provide expert clinical care and management for children with major haemoglobinopathies, and their families and carers. He/she will ensure care is given that recognises not only individual medical needs but also their social and developmental needs. The post holder will be expected to play an active role in continuing to develop safe and effective network services, and to assist in designing patient pathways to ensure optimalcare in the best environment. Along with the rest of the clinical team, he/she will beresponsible for ensuring the national peer review standards for haemoglobin disorders are met and maintained
- In addition to his/her managerial and strategic role, the post holder will be expected to play an active role in the day-to-day care of patients with haemoglobin disorders and other non-malignant haematological disorders, with a view to running independent clinic assessments, and providing expert advice to non-specialists.
Main duties of the job
Clinical Care Management: Administering specialized treatments such as regular blood transfusions and monitoring for adverse reactions. They provide care during outpatient visits, hospital stays, and in the community. Case Coordination: Acting as a central contact point for families to navigate complex care, reducing, and sometimes avoiding, hospital admissions. Education and Training: Providing comprehensive education to children, families, and schools about the condition, treatment, and self-management. They also develop educational programs for staff. Holistic Support: Addressing the emotional, psychological, and practical needs of the child and family, offering support to reduce feelings of being overwhelmed. Multidisciplinary Team (MDT) Working: Collaborating closely with consultants, community teams, and specialists to develop and implement care plans. Service Development: Developing nursing protocols, patient information documents, and maintaining databases. Transition Care: Supporting adolescents as they transition to adult
About us
St George's, Epsom and St Helier University Hospitals and Health Group cares for a population of four million people in South West London and North East Surrey.Our sites include St George's Hospital, one of 11 major trauma centres in the UK and the largest healthcare provider and major teaching hospital in the area; St Helier Hospital, home to the South West Thames Renal and Transplantation Unit and Queen Mary's Hospital for Children; and Epsom Hospital, home to the South West London Elective Orthopaedic Centre (SWLEOC).
After years of collaboration, our two Trusts became a hospitals group in 2021. While remaining as two separate Trusts, being a hospitals group will help us to collaborate more closely on research, and the development, education, and training of our 17,000-strong workforce.
At gesh we are committed to supporting flexible working arrangements. Applicants are encouraged to discuss any flexibility they may need during the recruitment process.
Job description
Job responsibilities
St Georges has a long-established paediatric hematology service caring for children with haemoglobinopathies, hemophilia and other inherited or long-term non-cancer blood disorders across SW London, Surrey and Sussex areas. This is the first appointment of a NonMalignant/ Haemoglobinopathies paediatric nurse specialist.The post is supported by Roald Dahls Marvellous Childrens Charity, bringing its experience in supporting nurses looking after children with long-term health conditions. As a Roald Dahl nurse the post holder will network with other Roald Dahl non-malignant hematology nurses, have support forprofessional development and attend the annual Roald Dahl nursing conference.The nurse will work as part of the team in providing patient reviews, school liaison andeducation, patient and family community support, GP support, and establishing a robustnursing education programme. They will support protocol and patient information development,develop nursing documents to support the care and management of patients; develop andmaintain patient databases. The CNS will work closely with children attending day care or admitted as inpatients and act as the key worker for transition from paediatric to adult services.
Job description
Job responsibilities
St Georges has a long-established paediatric hematology service caring for children with haemoglobinopathies, hemophilia and other inherited or long-term non-cancer blood disorders across SW London, Surrey and Sussex areas. This is the first appointment of a NonMalignant/ Haemoglobinopathies paediatric nurse specialist.The post is supported by Roald Dahls Marvellous Childrens Charity, bringing its experience in supporting nurses looking after children with long-term health conditions. As a Roald Dahl nurse the post holder will network with other Roald Dahl non-malignant hematology nurses, have support forprofessional development and attend the annual Roald Dahl nursing conference.The nurse will work as part of the team in providing patient reviews, school liaison andeducation, patient and family community support, GP support, and establishing a robustnursing education programme. They will support protocol and patient information development,develop nursing documents to support the care and management of patients; develop andmaintain patient databases. The CNS will work closely with children attending day care or admitted as inpatients and act as the key worker for transition from paediatric to adult services.
Person Specification
Qualifications
Essential
- Registered Children's Nurse with Degree or Master's level
- Facilitates decision making within within the MDT
- Ability to advocate for the CYP and family
Desirable
- Haemophilia course qualification
- Managing the CYP and families with Non Malignant haemoglobinopathies
- Other Haematology related experience
Experience
Essential
- 4 Years post qualifications
- Managing the CYP and family with haemoglobinopathies
Desirable
- Participating in nurse led clinics
- Managing CYP and families with long term/ inherited conditions
Skills
Essential
- Excellent interpersonal skills
- Ability to advocate for the patient and family
- Ability to deliver home treatment services as well as venepuncture and cannulation
Desirable
- Ability to access and use port-a-cath
- Ability to develop training programmes and facilitate best practice
Knowledge
Essential
- Knowledge of Haemoglobinopathies, new born screening, sickle cell
- Demonstrates knowledge and interpretation of basic haematology laboratory results
Desirable
- Knowledge of current trending haemoglobinopathies
Person Specification
Qualifications
Essential
- Registered Children's Nurse with Degree or Master's level
- Facilitates decision making within within the MDT
- Ability to advocate for the CYP and family
Desirable
- Haemophilia course qualification
- Managing the CYP and families with Non Malignant haemoglobinopathies
- Other Haematology related experience
Experience
Essential
- 4 Years post qualifications
- Managing the CYP and family with haemoglobinopathies
Desirable
- Participating in nurse led clinics
- Managing CYP and families with long term/ inherited conditions
Skills
Essential
- Excellent interpersonal skills
- Ability to advocate for the patient and family
- Ability to deliver home treatment services as well as venepuncture and cannulation
Desirable
- Ability to access and use port-a-cath
- Ability to develop training programmes and facilitate best practice
Knowledge
Essential
- Knowledge of Haemoglobinopathies, new born screening, sickle cell
- Demonstrates knowledge and interpretation of basic haematology laboratory results
Desirable
- Knowledge of current trending haemoglobinopathies
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
UK Registration
Applicants must have current UK professional registration. For further information please see
NHS Careers website (opens in a new window).
Additional information
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
UK Registration
Applicants must have current UK professional registration. For further information please see
NHS Careers website (opens in a new window).
