Job summary
This is a joint post, working mainly as a Neuromuscular Care Advisor, but also as a MND Care Coordinator for 1 day a week. This role will work collaboratively with the established Neuromuscular Care Advisor and MND Care Coordinator posts to support and enhance current practice. The post holder will work closely with individuals living with a neuromuscular condition, including Motor Neuron Disease, and their families to co-ordinate clinical care, improve overall quality of life and reduce unplanned hospital admissions.
Main duties of the job
Neuromuscular Care Advisor (0.4 WTE):
- In collaboration with the established Neuromuscular Care Advisor (0.6WTE), providing a single point of access for individuals living with a neuromuscular condition and their families to improve patient experience
- Reducing unplanned admissions through providing coordinated proactive community care, supporting people to stay safe at home and out of hospital
- Acting as a catalyst for change by working across professional and organisational boundaries to identify gaps in care and working collaboratively with colleagues to generate alternative solutions to best meet service users' needs
- Enhancing the quality of life of people living with neuromuscular conditions and their families through advocacy, self-management and empowerment.
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MND Care Coordinator (0.2 WTE):
- In collaboration with the established 0.8WTE MND Care Coordinator, help support the management of the day to day running of the MND Care and Research Network by providing a single point of contact for people with MND in the region, their carers and their health care professionals, including signposting to appropriate local service in the region with onward referral as appropriate, support with expert advice or recommended referral into the Care Centre.
About us
St George's, Epsom and St Helier University Hospitals and Health Group cares for a population of four million people in South West London and North East Surrey. Our sites include St George's Hospital, one of 11 major trauma centres in the UK and the largest healthcare provider and major teaching hospital in the area; St Helier Hospital, home to the South West Thames Renal and Transplantation Unit and Queen Mary's Hospital for Children; and Epsom Hospital, home to the South West London Elective Orthopaedic Centre (SWLEOC).
The Atkinson Morley Regional Neurosciences Centre at St George's Hospital is the regional neurosciences specialist unit for south-west London and Surrey.
The Neuromuscular Unit consists of 5 consultant neurologists, together with a fellow Care Advisor, Clinical Specialist Neuromuscular Physiotherapist, MND Care Coordinator, Clinical Genetics CNS, band 4 neuromuscular coordinator and a team of 5 consultant neurophysiologists, 3 consultant neuropathologists and a neuroradiologist.
The service works very closely in supporting patients' care with neurorehabilitation services, chronic pain services, paediatric neurology, cardiology, respiratory medicine and the nutrition team at St George's Hospital. The team also works very closely with the neurology departments in District General Hospitals throughout South West London and Surrey. Close links and joint working with local community neuro rehabilitation teams is essential.
Job description
Job responsibilities
To provide support and work closely with the established Neuromuscular Care Advisor for Surrey and the MND Care Coordinator:
- To assess the holistic needs of adults living with a neuromuscular condition and MND and support the effective delivery of their care. This encompasses medical, social and occupational needs.
- To enable collaborative working between all clinicians involved in the patients care and the regional neurosciences centre at St Georges Hospital.
- To act as a single point of contact for persons living with neuromuscular disease in Surrey and those living with MND across the region.
- To ensure that service users are supported and are empowered to make informed decisions about their care
- To work as an outreach advice service, signposting and referrer to local resources and community care teams. In rare, complex cases home visits may be required usually combined with local community teams.
- To maintain a database of patients and service user records
To attend the MND MDT across South West London and Surrey (each occurring every 4-6 weeks via MS Teams)
To work closely with the Motor Neurone Disease Association and local volunteers
Awareness of current clinical trial and to be able to discuss if people are interested in participation.
Care co-ordination
To provide support and work closely with the established Neuromuscular Care Advisor for Surrey and the MND Care Coordinator:
- To develop the role as a primary care co-ordinator between GPs, community services, secondary care and specialist neuromuscular care centres
- To be responsible for co-ordinating individual care by maintaining strong working relationships with relevant health and social care professionals
- To support the development of individual patient care plans where appropriate.
- To work within the acute and community neuromuscular MDTs, contributing to the development of the teams objectives and care pathways
- Advocate for the needs of people with neuromuscular conditions and MND across the network, highlighting their need for specialist, complex MDT support
To liaise with the MND Association, regional care advisors and hospice teams to provide extra support.
To organise appropriate community or medical support when necessary, in collaboration with the multidisciplinary team. To facilitate emergency and elective admission and effective discharge as appropriate for patients.
Liaise with the community rehabilitation teams to standardise practise across the region in relation to all aspects of care related to people with MND.
Job description
Job responsibilities
To provide support and work closely with the established Neuromuscular Care Advisor for Surrey and the MND Care Coordinator:
- To assess the holistic needs of adults living with a neuromuscular condition and MND and support the effective delivery of their care. This encompasses medical, social and occupational needs.
- To enable collaborative working between all clinicians involved in the patients care and the regional neurosciences centre at St Georges Hospital.
- To act as a single point of contact for persons living with neuromuscular disease in Surrey and those living with MND across the region.
- To ensure that service users are supported and are empowered to make informed decisions about their care
- To work as an outreach advice service, signposting and referrer to local resources and community care teams. In rare, complex cases home visits may be required usually combined with local community teams.
- To maintain a database of patients and service user records
To attend the MND MDT across South West London and Surrey (each occurring every 4-6 weeks via MS Teams)
To work closely with the Motor Neurone Disease Association and local volunteers
Awareness of current clinical trial and to be able to discuss if people are interested in participation.
Care co-ordination
To provide support and work closely with the established Neuromuscular Care Advisor for Surrey and the MND Care Coordinator:
- To develop the role as a primary care co-ordinator between GPs, community services, secondary care and specialist neuromuscular care centres
- To be responsible for co-ordinating individual care by maintaining strong working relationships with relevant health and social care professionals
- To support the development of individual patient care plans where appropriate.
- To work within the acute and community neuromuscular MDTs, contributing to the development of the teams objectives and care pathways
- Advocate for the needs of people with neuromuscular conditions and MND across the network, highlighting their need for specialist, complex MDT support
To liaise with the MND Association, regional care advisors and hospice teams to provide extra support.
To organise appropriate community or medical support when necessary, in collaboration with the multidisciplinary team. To facilitate emergency and elective admission and effective discharge as appropriate for patients.
Liaise with the community rehabilitation teams to standardise practise across the region in relation to all aspects of care related to people with MND.
Person Specification
Qualifications and Training
Essential
- Registered General Nurse or Therapist with experience in neurology including MND, neuromuscular conditions and/or neurorehabilitation (HCPC or NMC current registration)
Desirable
- Education to degree level or equivalent with evidence of further professional development
- Master's degree
- Relevant post registration qualification in specialist field
- Member of relevant SIG
Experience
Essential
- Minimum of 2 years post qualification NHS or similar experience and Band 6 or equivalent role
- Experience of delivering specialist advice and an understanding of the challenges faced relating to identification, assessment, treatment and ongoing management of a long-term condition
- Experience of working within neurology and with neuromuscular services
- Experience of handling confidential information relating to the care of an individual
- Experience of supervising junior members of staff
Desirable
- Working across organisations to deliver patient care
- Experience at band 7 level in a clinical role in neurology, rehab or respiratory
Skills
Essential
- Strong verbal and written communication skills and the ability to listen and support individuals who are facing health challenges
- SkillStrong verbal and written communication skills and the ability to listen and support individuals who are facing health challenges High level interpersonal skills such as negation, counselling, communication and utilise these when there are barriers to communication Able to work autonomously and as part of a multi-disciplinary team, contributing to the delivery of diagnosis, care and education for service users, families and carers Excellent problem-solving skills Ability to prioritise the workload of others and to work quickly and efficiently to deadlines Evidence of team building skills Excellent organisational skills
- Able to work autonomously and as part of a multi-disciplinary team, contributing to the delivery of diagnosis, care and education for service users, families and carers
- Excellent problem-solving skills
- Ability to prioritise the workload of others and to work quickly and efficiently to deadlines
- Evidence of team building skills
- Excellent organisational skills
Desirable
- Skilled in the use of outcome and evaluation measures.
Person Specification
Qualifications and Training
Essential
- Registered General Nurse or Therapist with experience in neurology including MND, neuromuscular conditions and/or neurorehabilitation (HCPC or NMC current registration)
Desirable
- Education to degree level or equivalent with evidence of further professional development
- Master's degree
- Relevant post registration qualification in specialist field
- Member of relevant SIG
Experience
Essential
- Minimum of 2 years post qualification NHS or similar experience and Band 6 or equivalent role
- Experience of delivering specialist advice and an understanding of the challenges faced relating to identification, assessment, treatment and ongoing management of a long-term condition
- Experience of working within neurology and with neuromuscular services
- Experience of handling confidential information relating to the care of an individual
- Experience of supervising junior members of staff
Desirable
- Working across organisations to deliver patient care
- Experience at band 7 level in a clinical role in neurology, rehab or respiratory
Skills
Essential
- Strong verbal and written communication skills and the ability to listen and support individuals who are facing health challenges
- SkillStrong verbal and written communication skills and the ability to listen and support individuals who are facing health challenges High level interpersonal skills such as negation, counselling, communication and utilise these when there are barriers to communication Able to work autonomously and as part of a multi-disciplinary team, contributing to the delivery of diagnosis, care and education for service users, families and carers Excellent problem-solving skills Ability to prioritise the workload of others and to work quickly and efficiently to deadlines Evidence of team building skills Excellent organisational skills
- Able to work autonomously and as part of a multi-disciplinary team, contributing to the delivery of diagnosis, care and education for service users, families and carers
- Excellent problem-solving skills
- Ability to prioritise the workload of others and to work quickly and efficiently to deadlines
- Evidence of team building skills
- Excellent organisational skills
Desirable
- Skilled in the use of outcome and evaluation measures.
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
UK Registration
Applicants must have current UK professional registration. For further information please see
NHS Careers website (opens in a new window).
Additional information
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
UK Registration
Applicants must have current UK professional registration. For further information please see
NHS Careers website (opens in a new window).
