Job summary
The haemoglobinopathy education programme is a funded by the health and inequalities team within NHSE and is aimed to locate, develop, create and improve education tools on haemoglobinopathy diagnoses, in a patient-centred way for affected individuals, parents and carers, health care professionals (HCPs) and the public.
The NHS Long Term Plan, published in January 2019, set out key actions to reduce healthcare inequalities across the system. In response, the National Healthcare.
and to raise and maintain awareness of the project. This post is aimed at driven self-directed and highly organised collaborative individual, who has ability to compile, review and write medical information in lay language aimed at patients, carers and the public. The post holder will need to consult with and interact with clinicians, patients and the public. The first priority of this role will be complete an educational resource on Thalassaemia that is comprehensive, patient centred and reflects the full spectrum of experience across the life span.
They will work with the whole team including the senior manager, clinical fellow and the project lead to agree key performance indicators by which success will be measured at the outset.
Main duties of the job
The post holder will work with a core hemoglobinopthy education programme team, which will consist of a senior project manager, a clinical fellow and the education project lead Dr Kesse-Adu - a specialist in managing patients with haemoglobinopathy diagnoses. The post holder will also be required to coordinate and work constructively with patient groups, the education leads across all 10 Sickle cell and the 4 thalassaemia HCCs, to ensure involvement from the clinical community involved in patient care and to raise and maintain awareness of the project.
This post is aimed at driven self-directed and highly organised collaborative individual, who has ability to compile, review and write medical information in lay language aimed at patients, carers and the public. The post holder will need to consult with and interact with clinicians, patients and the public. The first priority of this role will be complete an educational resource on Thalassaemia that is comprehensive, patient centred and reflects the full spectrum of experience across the life span.
They will work with the whole team including the senior manager, clinical fellow and the project lead to agree key performance indicators by which success will be measured at the outset.
About us
The Haematology, Cellular Pathology & Supporting Services Directorate is an integral part of the Cancer and Surgery Clinical Group. The Cancer and Surgery Clinical Group will bring together a number of Guy's & St Thomas' NHS Foundation Trust's services that work collaboratively across the hospital and with our partners to provide excellence in clinical care, research and academia. It will operate as a distinct entity with devolved accountability within the Trust. The aim of this Clinical Group is to deliver the GSTT Cancer and Surgery Strategy.
Job description
Job responsibilities
Produce an evidence based, complete set of information for individuals with haemoglobinopathies starting with Thalassaemia across the life span covering:
- Inheritance
- Early life
- Childhood
- Transition
- Conception/fertility
- Adulthood
- Ageing
The information must be comprehensive and include known common complications, common medical and surgical interventions, advice to parents and carers including managing life in general, health issues, education, reproduction, work and travel.
The post holder should be able to communicate the highly complex medical information to a patient audience in an accessible manner (verbal, written and numerical).
Coordinate and collaborate with multiple external stakeholders including HCC network education leads, clinical experts and patient groups and forums.
Participate in clinical governance activity to ensure information produced is complete and evidence based for both, both adult and paediatric.
Support and work collaboratively with the overarching haemoglobinopathy education project team in other areas as deemed appropriate and necessary by the project lead to ensure timely delivery of the project
Maintain flexibility in the working week to participate activities with the object of ensuring a high standard of the completed project.
- Participate in regular scheduled and ad hoc meetings with the project team
- Report regularly to the project lead and senior project manager
- Participate in events to launch and publicise the project and as part of this, the post-holder will prepare a report of the completed work, suitable for different audiences including patients, HCCs, the project lead and funders
Job description
Job responsibilities
Produce an evidence based, complete set of information for individuals with haemoglobinopathies starting with Thalassaemia across the life span covering:
- Inheritance
- Early life
- Childhood
- Transition
- Conception/fertility
- Adulthood
- Ageing
The information must be comprehensive and include known common complications, common medical and surgical interventions, advice to parents and carers including managing life in general, health issues, education, reproduction, work and travel.
The post holder should be able to communicate the highly complex medical information to a patient audience in an accessible manner (verbal, written and numerical).
Coordinate and collaborate with multiple external stakeholders including HCC network education leads, clinical experts and patient groups and forums.
Participate in clinical governance activity to ensure information produced is complete and evidence based for both, both adult and paediatric.
Support and work collaboratively with the overarching haemoglobinopathy education project team in other areas as deemed appropriate and necessary by the project lead to ensure timely delivery of the project
Maintain flexibility in the working week to participate activities with the object of ensuring a high standard of the completed project.
- Participate in regular scheduled and ad hoc meetings with the project team
- Report regularly to the project lead and senior project manager
- Participate in events to launch and publicise the project and as part of this, the post-holder will prepare a report of the completed work, suitable for different audiences including patients, HCCs, the project lead and funders
Person Specification
Education
Essential
- Undergraduate degree
- Evidence of recent and ongoing continuing personal development relevant to the role
Desirable
Experience
Essential
- Previously worked at band 7 or equivalent role
- Evidence of medical writing (medical publications)
- Experience of collaborative working with multiple stakeholders
- Experience working across organisational boundaries in the Health Service
- Experience of developing material with input from patients, families/carers and HCPs.
Desirable
- Publications in the field of hemoglobinopathy
- Experience of working in a multidisciplinary team and delivering a finished project in time
Knowledge
Essential
- Understanding of haemoglobinopathies especially thalassaemia
Desirable
- Direct experience delivering a project for a high need but rare group
Behaviours and skills
Essential
- Demonstrate a high level of computer literacy and highly competent use of windows operating systems and Microsoft office applications
- Good communication skills and ability to work with people from different backgrounds and levels of seniority including patients.
- Experience working across organisational boundaries in the Health Service
- Excellent problem-solving skills and ability to adapt to evolving environments
- Excellent oral and written communications and interpersonal skills
- Demonstrate high level of attention to detail.
Desirable
- Ability to plan/implement effective projects
- Evidence of strong organisational skills and ability to effectively implement change
- Experience of working with patients, families and carers
Person Specification
Education
Essential
- Undergraduate degree
- Evidence of recent and ongoing continuing personal development relevant to the role
Desirable
Experience
Essential
- Previously worked at band 7 or equivalent role
- Evidence of medical writing (medical publications)
- Experience of collaborative working with multiple stakeholders
- Experience working across organisational boundaries in the Health Service
- Experience of developing material with input from patients, families/carers and HCPs.
Desirable
- Publications in the field of hemoglobinopathy
- Experience of working in a multidisciplinary team and delivering a finished project in time
Knowledge
Essential
- Understanding of haemoglobinopathies especially thalassaemia
Desirable
- Direct experience delivering a project for a high need but rare group
Behaviours and skills
Essential
- Demonstrate a high level of computer literacy and highly competent use of windows operating systems and Microsoft office applications
- Good communication skills and ability to work with people from different backgrounds and levels of seniority including patients.
- Experience working across organisational boundaries in the Health Service
- Excellent problem-solving skills and ability to adapt to evolving environments
- Excellent oral and written communications and interpersonal skills
- Demonstrate high level of attention to detail.
Desirable
- Ability to plan/implement effective projects
- Evidence of strong organisational skills and ability to effectively implement change
- Experience of working with patients, families and carers
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
Additional information
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
