Job summary
The haemoglobinopathy education programme is a funded by the health and inequalities team within NHSE and is aimed to locate, develop, create and improve education tools on haemoglobinopathy diagnoses, in a patient-centred way for affected individuals, parents and carers, health care professionals (HCPs) and the public.
The systemic issues identified within care pathways of both sickle cell disease and thalassaemia is the clear and urgent focus for Education and Prevention. Gaps in knowledge, persistent misconceptions and negative attitudes alongside lack of awareness and support in the wider community contribute to poor experience and outcomes for individuals living with the conditions. Improving awareness and understanding of both conditions will lead to informed decisions about conception as well as better health and social outcomes for those affected with the condition, with the aim to prevent serious outcomes of the condition by addressing modifiable factors.
Main duties of the job
The post holder will work with a core hemoglobinopathy education programme team, which will consist of a patient information writing lead, a project manager/policy fellow who provide support, and the education project lead Dr Kesse-Adu - a specialist in managing patients with haemoglobinopathy diagnoses.
The post holder will also be required to coordinate and liaise with patient groups, the education leads across all 4 thalassaemia HCCs and also liaise across the 10 sickle HCCs to ensure awareness of the project and maintain engagement from the clinical community involved in patient care. This post is aimed at driven self-directed and highly organised collaborative individual, who has ability to offer strategic and operational input as well as support, complete a gap analysis and help prioritisation with input from clinicians and the patient community. They will need to consult regularly with, and interact with clinicians, patients and the public.
They will lead on the launch of the completed project, set key performance indicators by which success will be measured.
About us
The Trust consists of St Thomas' Hospital at Waterloo, including the Evelina Children's Hospital, Guy's Hospital at London Bridge and the Royal Brompton and Harefield.Our hospitals have a long and proud history, dating back almost 900 years, and have been at the forefront of medical progress and innovation since they were founded. We continue to build on these traditions and have a reputation for clinical, teaching and research excellence.
We provide a full range of hospital services for our local communities, as well as community health services for people living in Lambeth and Southwark. We also provide specialist services for patients from further afield, including cancer, cardiac, kidney, women's and orthopaedic services, and we are home to the Evelina Children's Hospital. We have one of the largest critical care units in the UK and one of the busiest A&E departments in London. See www.guysandstthomas.nhs.uk for further details.
The Haematology, Oncology and Haematology Trial team, Cellular Pathology and Support Service directorate is one of the largest within the Trust and comprises the following areas each with their own Clinical Lead.HaematologyHaemostasis and ThrombosisCellular Pathology and MortuaryOncology and Haematology Trials teamDimbleby Cancer Care Service
The directorate is headed by Joint-Clinical Directors, currently Dr Karen Breen and Dr Susan Robinson, the Co-Clinical Leads for Haematology are currently Dr Nita Prasannan and Dr Natalia Curto-Garcia.
Job description
Job responsibilities
- Working with the project team
- Complete a gap analysis on currently available education materials on haemoglobinopathy diagnoses aimed at the groups/topics listed below:
- Inheritance
- Early life
- Childhood
- Transition
- Conception/fertility
- Adulthood
- Co-morbidities/complications
- Ageing
- Travel
Coordinate with HCCs, allied health groups, academic institutions as well as patients, carers and public groups to set priorities.
Ensure project group delivers the completed project to time, with all agreed time point met
Ensure at the projects end the here is an evidence based, complete set of information or links to appropriate information hosted on an easily accessible platform for the groups noted above on haemoglobinopathies.
Liaise to ensure all HCCs have an agreed education assignment plan to reduce replication of work.
- Coordinate and collaborate with multiple external stakeholders including HCC network education leads, clinical experts and patient groups and forums
- Participate in clinical governance activity to ensure information produced is complete and evidence based.
Support and work collaboratively with the overarching haemoglobinopathy education project team in other areas as deemed appropriate and necessary by the project lead to ensure timely delivery of the project
Develop and use data, evidence and insights to formulate and drive actions for delivery this education project
Maintain some flexibility in the working week to participate in activities with the object of ensuring a high standard of the completed project.
Organise patient, public and clinician input and review groups, to ensure an accessible and appropriate tools are developed.
To organise and minute regular meetings with the project team
Report regularly to the project lead
Participate in events to launch and publicise the project and as part of this, the post-holder will prepare a report of the completed work, suitable for different audiences including patients, HCCs, the project lead and funders.
Job description
Job responsibilities
- Working with the project team
- Complete a gap analysis on currently available education materials on haemoglobinopathy diagnoses aimed at the groups/topics listed below:
- Inheritance
- Early life
- Childhood
- Transition
- Conception/fertility
- Adulthood
- Co-morbidities/complications
- Ageing
- Travel
Coordinate with HCCs, allied health groups, academic institutions as well as patients, carers and public groups to set priorities.
Ensure project group delivers the completed project to time, with all agreed time point met
Ensure at the projects end the here is an evidence based, complete set of information or links to appropriate information hosted on an easily accessible platform for the groups noted above on haemoglobinopathies.
Liaise to ensure all HCCs have an agreed education assignment plan to reduce replication of work.
- Coordinate and collaborate with multiple external stakeholders including HCC network education leads, clinical experts and patient groups and forums
- Participate in clinical governance activity to ensure information produced is complete and evidence based.
Support and work collaboratively with the overarching haemoglobinopathy education project team in other areas as deemed appropriate and necessary by the project lead to ensure timely delivery of the project
Develop and use data, evidence and insights to formulate and drive actions for delivery this education project
Maintain some flexibility in the working week to participate in activities with the object of ensuring a high standard of the completed project.
Organise patient, public and clinician input and review groups, to ensure an accessible and appropriate tools are developed.
To organise and minute regular meetings with the project team
Report regularly to the project lead
Participate in events to launch and publicise the project and as part of this, the post-holder will prepare a report of the completed work, suitable for different audiences including patients, HCCs, the project lead and funders.
Person Specification
Education
Essential
- Masters degree or demonstrable evidence of equivalent experience
- Evidence of recent and ongoing continuing personal development relevant to the role
Desirable
- Post graduate leadership/ management experience
Experience
Essential
- Project management experience
- Extensive previous experience of working at a senior level in a commissioning, business management
Desirable
- Experience in health care management
Knowledge
Essential
- Understanding of health inequalities
Desirable
- Direct experience delivering a project for a high need but rare group
Behaviours and skills
Essential
- Demonstrate a high level of computer literacy and highly competent use of windows operating systems and Microsoft office applications
- Experience working across organisational boundaries in the Health Service
Desirable
- Ability to plan/implement effective projects
Person Specification
Education
Essential
- Masters degree or demonstrable evidence of equivalent experience
- Evidence of recent and ongoing continuing personal development relevant to the role
Desirable
- Post graduate leadership/ management experience
Experience
Essential
- Project management experience
- Extensive previous experience of working at a senior level in a commissioning, business management
Desirable
- Experience in health care management
Knowledge
Essential
- Understanding of health inequalities
Desirable
- Direct experience delivering a project for a high need but rare group
Behaviours and skills
Essential
- Demonstrate a high level of computer literacy and highly competent use of windows operating systems and Microsoft office applications
- Experience working across organisational boundaries in the Health Service
Desirable
- Ability to plan/implement effective projects
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
Additional information
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
