Ty Hafan

Paediatric Critical Care Liaison Nurse

The closing date is 26 May 2025

Job summary

Could you beTy Hafans new Paediatric Critical Care Liaison Nurse?

We are looking for an exceptional and experienced nurse to support us in delivering a test & learn project to strengthen care pathways between the Paediatric Critical Care Unit (PCCU) at Noah's Ark HospitalandTy Hafan, and the wider paediatric palliative care team; ensuring families get timely access to hospice and palliative care support if needed. The role will support colleagues on the busy PCCU as they help families navigate the uncertainty and distress of having a very sick child.

Please only apply via our careers website.

Main duties of the job

If you have the passion and drive to make a difference to families facing into the worst times of their lives; experience of hospice care, specialist paediatric palliative care and of working on a busy intensive care or high dependency unit then you could be the person we are looking for.

The post is initially a 2 year fixed term contract with continuation beyond this dependent on the impact of the role and securing funds. The role will mainly be based at the Noahs Ark Childrens Hospital for Wales with regular interface with the Ty Hafan hospice team in Sully. There may also be the need to provide support in other hospital units across our catchment area. The role is full time and will be primarily Monday to Friday but a degree of flexibility to meet family needs will be required and there will also be some out of hours on call duties.

Please only apply via our careers website.

Our enhanced benefits package includes:

  • Unsocial pay enhancements for nights, evenings, weekends and bank holidays (Ranging from +25% to +60%)
  • Investment in your professional development
  • Holiday entitlement of 30 days (rising to 32 days with service) plus Bank Holidays
  • The ability to continue an existing NHS pension
  • Life assurance- death in service benefit
  • Wellbeing support and clinical supervision
  • Employee assistance program
  • Unlimited access to a 24/7 online GP
  • Healthcare Cash Plan
  • Staff complimentary therapy and yoga sessions offered regularly.
  • Cycle to work scheme
  • Discounted gym membership and shopping discounts

About us

Ty Hafan's ambition is that when a child's life will be short, no family should have to live it on their own. Sadly, we know that thousands of families in Wales are struggling alone through fear, exhaustion and uncertainty that comes with caring for a child whose life will be short. We believe that no family should have to live this on their own and we are determined to walk alongside every family through life, death and beyond.

At Ty Hafan we are experts at caring for children with life-shortening conditions and our services support families in our hospice, in community settings, local hospitals and in families' homes. We understand that needs of each child and their family are unique and we know that caring for a child with life-shortening condition is often extremely demanding. Our aim is to make sure that no one is doing this alone.

OurVision: A Wales where every child with life-shortening conditions lives a fulfilling life, supported with the compassion and specialist care and their family need.

Our Purpose: No family should have to face the unimaginable loss of their child alone. With children and families at the heart of all we do, we provide free care and support in our hospice and in community, offering a lifeline through out the child's short life, at end of life, through bereavement and beyond.

Our Values: AtTy Hafan we make a difference by living our values which are Demonstrating Compassion, Providing Excellent Service, Working Together and Taking Ownership.

Details

Date posted

21 May 2025

Pay scheme

Other

Salary

£44,398 to £50,807 a year

Contract

Fixed term

Duration

2 years

Working pattern

Full-time

Reference number

B0274-993

Job locations

Noah's Ark Children's Hospital for Wales

Hospital for Wales University Hospital Of Wales, Heath Park Way

Cardiff

Cardiff

CF14 5XW


Job description

Job responsibilities

Main Duties and Responsibilities:

Clinical:

Work with the PCCU team in identifying children and young people who would benefit from palliative care and hospice input and facilitate timely and sensitive conversations about their goals of care, including parallel planning, with their families and professionals involved as appropriate. This will involve:

Attending ward rounds and relevant meetings as required

Holistic needs assessment of patients on PCCU

Liaising with the paediatric palliative care (PPC) team and/or children's hospice team as appropriate.

Being a resource for information and advice on available palliative care service to the PCCU and wider MDT teams.

Attend weekly PPC MDT meeting and be involved in discussion of the relevant patients on PCCU and feedback to the PCCU team as necessary.

Where appropriate, support PCCU and PPC teams in facilitating the MDT meeting to discuss a patient care where palliative care or parallel planning is an essential part of the overall care.

Facilitate transfers to the hospice (or other care setting) for end-of-life care from PCCU or other acute setting, in partnership with the PPC team. This includes arranging familys pre-transfer visit to the hospice where appropriate.

Work collaboratively with the hospital clinical team, specialist nurses and hospice team to deliver a safe and effective service to the children with palliative care needs which makes best use of available resources, and which provides holistic, family centred support.

In partnership with the Ty Hafan Family Support Team and appropriate Health Board Teams as required, provide emotional, psychological and spiritual advice and support to families ensuring religious and cultural requirements are understood and supported.

Act as a source of information and advice on palliative and hospice care when decisions around pathways of care is being made for a critically unwell child in acute clinical settings across the geographical area.

In liaison with the PPC Consultant/Health Board PPC Specialist Nurse, to support with symptom management and palliative care of critically unwell child in acute clinical settings across the geographical area.

Support the discharge of children and young people with palliative care needs from PCCU to hospital wards, home or Ty Hafan including ongoing communication with the family and professionals post-discharge in partnership with the PPC CNS as needed. Education, training and service quality improvement:

Work with the practice educators in PCCU, Ty Hafan and other acute care settings to provide education to staff in Ty Hafan and Health Boards across the geographical area in relation to palliative care, supporting with the coordination and delivery of training/study sessions.

Maintain own professional portfolio in accordance with NMC revalidation requirements. Undertake relevant learning, training and development appropriate to your role to support professional development and maintain the necessary skills and competencies to meet the requirements of the role.

Adhere to the NMC Code of professional Conduct working within and accepting responsibility for maintaining agreed levels of competence.

Remain up to date with current literature and research within palliative care nursing to maintain your own professional and personal development in accordance with NMC revalidation requirements, attending mandatory training and study sessions as required.

Contribute effectively to the Performance Development Review process and 1- 1s.

Attend regular clinical supervision to encourage, develop and maintain reflective practice and receive professional support.

Maintain high standards of evidence-based care delivery to children and young people and ensure that standards of care are based where available on valid, current research findings.

Support coordination and delivery of debrief sessions for staff in partnership with colleagues within PCCU, PPC team, Ty Hafan and other Health Boards where needed.

Review and ensure pathways are in place and appropriate for each family, linking with existing bereavement support services within the Health Board, Ty Hafan and the wider community.

Contribute to the service quality improvement activities on PCCU and for the paediatric palliative care network by being proactive in the monitoring, reviewing and evaluating the service through agreed standards of care, audit, and other quality procedures, ensuring the voices of the patients and families also inform service development and improvement.

Contribute to the development of local and national palliative and supportive care initiatives, directives and strategies through involvement in consultation and feedback processes.

Participate in the development of new policies, standards and guidelines to improve the post holders own and others practice, including other professions. Communication:

Provide families with relevant and accessible written information regarding palliative care and hospice services.

Develop and maintain effective, collaborative, professional relationships and communications with, and liaison between, children, young people, families, professionals and non-professional carers. Establish and maintain a support system across professional, organisational and geographical boundaries. Work closely with the network and hospice to support exemplary multiagency working at the end of life.

Using highly developed communication skills, manage challenging situations that may arise e.g. strong disagreements in views, wishes and needs, complicated grief, professional ethical dilemmas.

Maintain accurate, clear and contemporaneous records and documentation in line with local policy and in accordance with the NMC Code of Conduct. Equality, Diversity and Inclusion

Act as a positive role model by promoting equality, diversity, and inclusion. Actively challenge discrimination and consistently adhere to Ty Hafans EDI Policy.

Safeguarding

Ensure safeguarding measures are always implemented.

Confidentiality

Understand and adhere to Ty Hafans data protection policies and procedures.

Maintain high standards of information governance and confidentiality at all times.

Work within the Caldicott Guidelines regarding patient confidentiality and access to record.

Health and Safety:

Take reasonable care for the health and safety of yourself and other people who may be affected by their actions at work.

Report incidents and accidents in line with procedures.

Abide by Infection Prevention and Control policies relevant to their area of work and undertake the necessary level of training.

Co-operate with Ty Hafan and the Health Boards to ensure that health and safety duties and requirements are complied with.

It is the postholders responsibility to conform to procedures, rules and codes of practice; and to use properly and conscientiously all safety equipment, devices, protective clothing and equipment which is fitted or made available, and to attend training courses as requested. Then post holder should be aware of, and adhere to, current policies and guidance regarding infection control at all times.

Sustainability

Use Charity resources responsibly and be mindful of any costs associated.

Minimise environmental impact in the performance of your role and actively contribute to the delivery of the Environmental Policy.

This job description is flexible as it is an outline of the main duties only and will be reviewed periodically. The post holder is also expected to undertake other duties appropriate with the band and level of responsibility of this role for which they have the necessary experience and/or training to complete.

Job description

Job responsibilities

Main Duties and Responsibilities:

Clinical:

Work with the PCCU team in identifying children and young people who would benefit from palliative care and hospice input and facilitate timely and sensitive conversations about their goals of care, including parallel planning, with their families and professionals involved as appropriate. This will involve:

Attending ward rounds and relevant meetings as required

Holistic needs assessment of patients on PCCU

Liaising with the paediatric palliative care (PPC) team and/or children's hospice team as appropriate.

Being a resource for information and advice on available palliative care service to the PCCU and wider MDT teams.

Attend weekly PPC MDT meeting and be involved in discussion of the relevant patients on PCCU and feedback to the PCCU team as necessary.

Where appropriate, support PCCU and PPC teams in facilitating the MDT meeting to discuss a patient care where palliative care or parallel planning is an essential part of the overall care.

Facilitate transfers to the hospice (or other care setting) for end-of-life care from PCCU or other acute setting, in partnership with the PPC team. This includes arranging familys pre-transfer visit to the hospice where appropriate.

Work collaboratively with the hospital clinical team, specialist nurses and hospice team to deliver a safe and effective service to the children with palliative care needs which makes best use of available resources, and which provides holistic, family centred support.

In partnership with the Ty Hafan Family Support Team and appropriate Health Board Teams as required, provide emotional, psychological and spiritual advice and support to families ensuring religious and cultural requirements are understood and supported.

Act as a source of information and advice on palliative and hospice care when decisions around pathways of care is being made for a critically unwell child in acute clinical settings across the geographical area.

In liaison with the PPC Consultant/Health Board PPC Specialist Nurse, to support with symptom management and palliative care of critically unwell child in acute clinical settings across the geographical area.

Support the discharge of children and young people with palliative care needs from PCCU to hospital wards, home or Ty Hafan including ongoing communication with the family and professionals post-discharge in partnership with the PPC CNS as needed. Education, training and service quality improvement:

Work with the practice educators in PCCU, Ty Hafan and other acute care settings to provide education to staff in Ty Hafan and Health Boards across the geographical area in relation to palliative care, supporting with the coordination and delivery of training/study sessions.

Maintain own professional portfolio in accordance with NMC revalidation requirements. Undertake relevant learning, training and development appropriate to your role to support professional development and maintain the necessary skills and competencies to meet the requirements of the role.

Adhere to the NMC Code of professional Conduct working within and accepting responsibility for maintaining agreed levels of competence.

Remain up to date with current literature and research within palliative care nursing to maintain your own professional and personal development in accordance with NMC revalidation requirements, attending mandatory training and study sessions as required.

Contribute effectively to the Performance Development Review process and 1- 1s.

Attend regular clinical supervision to encourage, develop and maintain reflective practice and receive professional support.

Maintain high standards of evidence-based care delivery to children and young people and ensure that standards of care are based where available on valid, current research findings.

Support coordination and delivery of debrief sessions for staff in partnership with colleagues within PCCU, PPC team, Ty Hafan and other Health Boards where needed.

Review and ensure pathways are in place and appropriate for each family, linking with existing bereavement support services within the Health Board, Ty Hafan and the wider community.

Contribute to the service quality improvement activities on PCCU and for the paediatric palliative care network by being proactive in the monitoring, reviewing and evaluating the service through agreed standards of care, audit, and other quality procedures, ensuring the voices of the patients and families also inform service development and improvement.

Contribute to the development of local and national palliative and supportive care initiatives, directives and strategies through involvement in consultation and feedback processes.

Participate in the development of new policies, standards and guidelines to improve the post holders own and others practice, including other professions. Communication:

Provide families with relevant and accessible written information regarding palliative care and hospice services.

Develop and maintain effective, collaborative, professional relationships and communications with, and liaison between, children, young people, families, professionals and non-professional carers. Establish and maintain a support system across professional, organisational and geographical boundaries. Work closely with the network and hospice to support exemplary multiagency working at the end of life.

Using highly developed communication skills, manage challenging situations that may arise e.g. strong disagreements in views, wishes and needs, complicated grief, professional ethical dilemmas.

Maintain accurate, clear and contemporaneous records and documentation in line with local policy and in accordance with the NMC Code of Conduct. Equality, Diversity and Inclusion

Act as a positive role model by promoting equality, diversity, and inclusion. Actively challenge discrimination and consistently adhere to Ty Hafans EDI Policy.

Safeguarding

Ensure safeguarding measures are always implemented.

Confidentiality

Understand and adhere to Ty Hafans data protection policies and procedures.

Maintain high standards of information governance and confidentiality at all times.

Work within the Caldicott Guidelines regarding patient confidentiality and access to record.

Health and Safety:

Take reasonable care for the health and safety of yourself and other people who may be affected by their actions at work.

Report incidents and accidents in line with procedures.

Abide by Infection Prevention and Control policies relevant to their area of work and undertake the necessary level of training.

Co-operate with Ty Hafan and the Health Boards to ensure that health and safety duties and requirements are complied with.

It is the postholders responsibility to conform to procedures, rules and codes of practice; and to use properly and conscientiously all safety equipment, devices, protective clothing and equipment which is fitted or made available, and to attend training courses as requested. Then post holder should be aware of, and adhere to, current policies and guidance regarding infection control at all times.

Sustainability

Use Charity resources responsibly and be mindful of any costs associated.

Minimise environmental impact in the performance of your role and actively contribute to the delivery of the Environmental Policy.

This job description is flexible as it is an outline of the main duties only and will be reviewed periodically. The post holder is also expected to undertake other duties appropriate with the band and level of responsibility of this role for which they have the necessary experience and/or training to complete.

Person Specification

Experience

Essential

  • 8. Extensive experience in relevant
  • speciality (paediatric intensive
  • care/paediatric palliative care) and
  • confident in delivering care to children
  • with multiple complex health care
  • needs.
  • 9. Experience of multiagency nursing
  • and working and taking part in
  • multidisciplinary team meetings.
  • 10. Experience of working with
  • cultural diversity.
  • 11. Experience of supporting end of
  • life care and bereavement work.

Desirable

  • 22. Evidence of specific knowledge and
  • skills in paediatric palliative care
  • 23. Experience of developing and
  • maintaining relationships across
  • organisational boundaries within health,
  • social care and third sector.
  • 24. Experience of Clinical audit and
  • research

Qualifications

Essential

  • 1. RN Child, RGN or RM
  • 2. Relevant post registration diploma
  • or evidence of at least 3 years
  • experience in Intensive Care
  • speciality.
  • 3. Evidence of continuous
  • professional development in nursing
  • and palliative care practice

Desirable

  • 21. Post registration Diploma in
  • paediatric palliative care or Masters/
  • advanced level qualification or
  • equivalent post registration experience
  • in a nursing discipline
Person Specification

Experience

Essential

  • 8. Extensive experience in relevant
  • speciality (paediatric intensive
  • care/paediatric palliative care) and
  • confident in delivering care to children
  • with multiple complex health care
  • needs.
  • 9. Experience of multiagency nursing
  • and working and taking part in
  • multidisciplinary team meetings.
  • 10. Experience of working with
  • cultural diversity.
  • 11. Experience of supporting end of
  • life care and bereavement work.

Desirable

  • 22. Evidence of specific knowledge and
  • skills in paediatric palliative care
  • 23. Experience of developing and
  • maintaining relationships across
  • organisational boundaries within health,
  • social care and third sector.
  • 24. Experience of Clinical audit and
  • research

Qualifications

Essential

  • 1. RN Child, RGN or RM
  • 2. Relevant post registration diploma
  • or evidence of at least 3 years
  • experience in Intensive Care
  • speciality.
  • 3. Evidence of continuous
  • professional development in nursing
  • and palliative care practice

Desirable

  • 21. Post registration Diploma in
  • paediatric palliative care or Masters/
  • advanced level qualification or
  • equivalent post registration experience
  • in a nursing discipline

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Additional information

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Employer details

Employer name

Ty Hafan

Address

Noah's Ark Children's Hospital for Wales

Hospital for Wales University Hospital Of Wales, Heath Park Way

Cardiff

Cardiff

CF14 5XW


Employer's website

https://www.tyhafan.org (Opens in a new tab)

Employer details

Employer name

Ty Hafan

Address

Noah's Ark Children's Hospital for Wales

Hospital for Wales University Hospital Of Wales, Heath Park Way

Cardiff

Cardiff

CF14 5XW


Employer's website

https://www.tyhafan.org (Opens in a new tab)

Employer contact details

For questions about the job, contact:

HR Partner (Care)

Rhiannon

careers@tyhafan.org

Details

Date posted

21 May 2025

Pay scheme

Other

Salary

£44,398 to £50,807 a year

Contract

Fixed term

Duration

2 years

Working pattern

Full-time

Reference number

B0274-993

Job locations

Noah's Ark Children's Hospital for Wales

Hospital for Wales University Hospital Of Wales, Heath Park Way

Cardiff

Cardiff

CF14 5XW


Supporting documents

Privacy notice

Ty Hafan's privacy notice (opens in a new tab)