Job summary
We are seeking a motivated and detail-orientated Head of Information Governance and Business Intelligence Lead to join our team. This is a unique opportunity to shape how information is managed, protected and transformed into insights that drive decision-making and patient care.
Main duties of the job
The Information Governance
and Business Intelligence Lead will oversee all aspects of information governance, data protection
compliance, and business intelligence within the Hospice. This role ensures the
Hospice complies with legal and regulatory data standards while enabling the
strategic use of data to drive operational efficiency, effectiveness, and
organisational insight.
A key part of this role
involves leading the NHS Data Security and Protection Toolkit (DSPT) submission
process as well as working closely with clinical colleagues to present
accurate, timely, and actionable data via dashboards and performance reports.
An essential
responsibility of this role is to ensure the organisation meets the Care
Quality Commission (CQC)s regulatory requirements, on data, evidence, and
compliance.
About us
At Heart of Kent Hospice, we believe that everyone
deserves compassionate, expert care when there is no cure for their illness and
when they have a limited time left to live.
We are a charity and we dont charge a penny for
our care. We depend on the compassion and kindness of you, the people of this
community, to power our services and ensure that everyone gets the help they
need.
We provide specialist care and support to adults
who have a terminal illness as well as their families, friends and carers. We
help people to live as fully and as well as possible for the rest of their
lives and ensure that their final days are comfortable and peaceful,
wherever they choose to be. We treat
every individual as the unique and special person that they are. Everything we
do is tailored and personalised.
Our vision is that
everyone living with a terminal illness in our community will have the best
quality of life. Our purpose is to
enable people with a terminal illness in our community to live with comfort,
independence and dignity to the end of their lives, and to support those
closest to them. All our care is underpinned by our core
values of compassion, integrity, respect and teamwork. These values guide
our decision-making and how we conduct ourselves in our work and every one of
our colleagues plays an important part in enabling us to give our patients and
their families the best possible care.
If youre passionate about our cause consider
joining our team.
Job description
Job responsibilities
Main Responsibilities
Information Governance
- Act as the hospices lead on information governance, providing expertise on compliance with the UK GDPR, Data Protection Act 2018, The Data (Use and Access) Act 2025 and NHS information standards alongside our Data Protection Officer.
- Lead and manage the annual completion, evidence collection, and submission of the NHS Data Security and Protection Toolkit (DSPT), ensuring full compliance and continuous improvement.
- Maintain the data asset register, data breach register, record of processing activities (RoPA), provide guidance on Data Protection Impact Assessments (DPIAs) to colleagues across the organisation, and oversee internal audits.
- Respond to and liaise with relevant parties including the Data Protection Officer (DPO), Caldicott Guardian, and Information Commissioners Office (ICO) as necessary, to manage any Subject Access Requests (SARs) and data breaches, in line with legislation.
- Deliver training and guidance across the organisation on information governance policies, procedures, and best practice legislative requirements.
- Promote a positive information governance culture and responding to incidents and embedding learnings within the organisation.
- Be approachable and visible throughout the organisation as the primary contact for information governance questions or concerns.
- Work alongside the Senior Information Risk Owner (SIRO), DPO, Caldicott Guardian and our Managed Service Provider (MSP) to embed and promote the importance of data security across the organisation.
Business Intelligence & Reporting
- Develop, manage, and maintain the patient database, incident system, dashboards and reporting to aid clinical, operational, and strategic decision-making.
- Development of clinical systems to optimise data management to support patient pathways and care.
- Work collaboratively with the clinical management team to produce clinical dashboards and performance metrics that reflect patient outcomes, caseload activity, and quality indicators that reflect both Care Quality Commission (CQC) Single Assessment Framework standards and National Institute for Health and Care Excellence (NICE) guidelines.
- Attend and present regularly at Clinical Management Team meetings, providing insights, interpreting trends, and supporting discussions with data driven evidence.
- Partner with all departments such as Clinical, Fundraising, People Services and Retail, to produce tailored reports and data insight analysis.
- Collaborate with the other Kent and Medway adult hospice data leads to generate information and insights across the catchment area to inform the palliative and end of life care strategy.
- Work with other to external stakeholders, as necessary, such as the Integrated Care Board (ICB) to drive informed decision making and evidence for funding requirements.
Systems, IT & Data Management
- Use and manage data tools such as Microsoft Excel (including pivot tables, formulas, and charts), Power BI, and SQL for querying, analysing, and visualising data.
- Support integration and automation between organisational systems ensuring consistency and accuracy of data reporting.
- Champion a data quality culture and lead on improvements in data accuracy, completeness, and accessibility.
- Ensure appropriate technical and procedural controls are in place to protect data security and integrity across systems.
Job description
Job responsibilities
Main Responsibilities
Information Governance
- Act as the hospices lead on information governance, providing expertise on compliance with the UK GDPR, Data Protection Act 2018, The Data (Use and Access) Act 2025 and NHS information standards alongside our Data Protection Officer.
- Lead and manage the annual completion, evidence collection, and submission of the NHS Data Security and Protection Toolkit (DSPT), ensuring full compliance and continuous improvement.
- Maintain the data asset register, data breach register, record of processing activities (RoPA), provide guidance on Data Protection Impact Assessments (DPIAs) to colleagues across the organisation, and oversee internal audits.
- Respond to and liaise with relevant parties including the Data Protection Officer (DPO), Caldicott Guardian, and Information Commissioners Office (ICO) as necessary, to manage any Subject Access Requests (SARs) and data breaches, in line with legislation.
- Deliver training and guidance across the organisation on information governance policies, procedures, and best practice legislative requirements.
- Promote a positive information governance culture and responding to incidents and embedding learnings within the organisation.
- Be approachable and visible throughout the organisation as the primary contact for information governance questions or concerns.
- Work alongside the Senior Information Risk Owner (SIRO), DPO, Caldicott Guardian and our Managed Service Provider (MSP) to embed and promote the importance of data security across the organisation.
Business Intelligence & Reporting
- Develop, manage, and maintain the patient database, incident system, dashboards and reporting to aid clinical, operational, and strategic decision-making.
- Development of clinical systems to optimise data management to support patient pathways and care.
- Work collaboratively with the clinical management team to produce clinical dashboards and performance metrics that reflect patient outcomes, caseload activity, and quality indicators that reflect both Care Quality Commission (CQC) Single Assessment Framework standards and National Institute for Health and Care Excellence (NICE) guidelines.
- Attend and present regularly at Clinical Management Team meetings, providing insights, interpreting trends, and supporting discussions with data driven evidence.
- Partner with all departments such as Clinical, Fundraising, People Services and Retail, to produce tailored reports and data insight analysis.
- Collaborate with the other Kent and Medway adult hospice data leads to generate information and insights across the catchment area to inform the palliative and end of life care strategy.
- Work with other to external stakeholders, as necessary, such as the Integrated Care Board (ICB) to drive informed decision making and evidence for funding requirements.
Systems, IT & Data Management
- Use and manage data tools such as Microsoft Excel (including pivot tables, formulas, and charts), Power BI, and SQL for querying, analysing, and visualising data.
- Support integration and automation between organisational systems ensuring consistency and accuracy of data reporting.
- Champion a data quality culture and lead on improvements in data accuracy, completeness, and accessibility.
- Ensure appropriate technical and procedural controls are in place to protect data security and integrity across systems.
Person Specification
Qualifications
Desirable
- Professional qualifications in Data Protection (e.g., BCS DPO certification) or Business Intelligence and Analytics.
Experience
Essential
- Knowledge of UK data protection law and NHS information governance requirements.
- High-level proficiency in Microsoft Excel, including advanced functions for data analysis.
- Experience with business intelligence tools such as Power BI or equivalent.
- Proven ability to translate complex data into accessible reports and presentations.
- Comfortable presenting data in meetings and engaging with clinical and senior leadership teams.
- Excellent organisational and time-management skills, with strong attention to detail.
Desirable
- Previous experience in a hospice, NHS, or charitable healthcare environment.
- Familiarity with clinical systems such as iCare, EMIS or SystmOne.
- Experience designing or managing data architecture or reporting infrastructure.
- Experience of leading and submitting the NHS Data Security and Protection Toolkit -DSPT.
- Working knowledge of SQL for data extraction, manipulation, and reporting.
Personal Qualities
Essential
- A confident communicator with the ability to engage and influence.
- Analytical and proactive, with a strong problem-solving mindset.
- Resilient, adaptable, and capable of managing competing demands.
Person Specification
Qualifications
Desirable
- Professional qualifications in Data Protection (e.g., BCS DPO certification) or Business Intelligence and Analytics.
Experience
Essential
- Knowledge of UK data protection law and NHS information governance requirements.
- High-level proficiency in Microsoft Excel, including advanced functions for data analysis.
- Experience with business intelligence tools such as Power BI or equivalent.
- Proven ability to translate complex data into accessible reports and presentations.
- Comfortable presenting data in meetings and engaging with clinical and senior leadership teams.
- Excellent organisational and time-management skills, with strong attention to detail.
Desirable
- Previous experience in a hospice, NHS, or charitable healthcare environment.
- Familiarity with clinical systems such as iCare, EMIS or SystmOne.
- Experience designing or managing data architecture or reporting infrastructure.
- Experience of leading and submitting the NHS Data Security and Protection Toolkit -DSPT.
- Working knowledge of SQL for data extraction, manipulation, and reporting.
Personal Qualities
Essential
- A confident communicator with the ability to engage and influence.
- Analytical and proactive, with a strong problem-solving mindset.
- Resilient, adaptable, and capable of managing competing demands.
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
