East Anglia’s Children’s Hospices

Clinical Nurse Specialist (LTV)

The closing date is 02 November 2025

Job summary

Are you a passionate and experienced nurse with specialist knowledge in children and young peoples respiratory care and long-term ventilation (LTV)? Do you want to make a real difference in the lives of families facing life-limiting conditions?

East Anglias Childrens Hospices (EACH) is seeking a Clinical Nurse Specialist (CYP Long Term Ventilation & Respiratory Care) to lead and deliver expert, evidence-based care for babies, children, and young people (BCYP) with complex respiratory and LTV needs. This is a unique opportunity to work across hospice and home settings, supporting families and developing the skills of our care teams.

Main duties of the job

  • Deliver highly specialised, family-centred nursing care for BCYP with respiratory and LTV needs.
  • Act as an expert resource and advocate for families, supporting safe care planning and hospital discharge.
  • Lead and support clinical teaching, competency development, and service improvement initiatives.
  • Collaborate with regional respiratory teams and contribute to seamless transition planning to adult services.
  • Be a visible clinical leader, providing mentorship and situational learning across EACH locations.

About us

Comprehensive range of benefits:

  • Free onsite parking & subsidised meals at our hospices
  • Pool car provided when working in the community
  • Employee health cash plan & wellbeing support schemes
  • NHS pension - continuation if already contribution
  • Enhanced Annual leave Entitlement - 27 days + 8 UK Bank Holidays
  • Additional holiday purchase scheme
  • AVIVA pension package up to 7% Employer Contribution including Life Assurance
  • Free eye tests & cycle to work scheme

East Anglia's Children's Hospices (EACH) supports families and cares for children and young people with life threatening conditions across Cambridgeshire, Essex, Norfolk and Suffolk.

At EACH we believe in fostering a workplace where every individual feels valued and respected. We are committed to building a culture of inclusion where differences are embraced. We are actively seeking talent from all walks of life, recognising that diversity drives innovation, creativity and success.

Join us on a journey to create a more inclusive workplace, where everyone has equal opportunities to grow, contribute and succeed. We welcome candidates from all backgrounds to apply for opportunities at EACH and adjustments will be made to facilitate the application and selection process.

Details

Date posted

14 October 2025

Pay scheme

Other

Salary

£47,810 to £54,710 a year

Contract

Permanent

Working pattern

Full-time

Reference number

EACH1146700

Job locations

Church Lane

Milton

Cambridgeshire

CB24 6AB


The Treehouse Hospice

St. Augustines Gardens

Ipswich

IP3 8NS


The Nook

Pigot Lane

Norwich

NR14 7PX


Job description

Job responsibilities

Clinical Responsibilities

  • To be a highly competent practitioner providing specialist clinical skills and knowledge in relation to respiratory care for BCYP with life limiting conditions using EACH services.
  • Line management duties for other staff members within the LTV team at EACH.
  • To deliver highly specialised individualised, family centred, nursing care to BCYP with respiratory disease and LTV needs. Ensuring all BCPYs have individualised LTV care plans for the safe delivery of care.
  • To implement teaching packages and competency frameworks for BCYP with respiratory and LTV needs in EACH and to be actively involved in the development of respiratory related protocols and procedures e.g. policies, standard operating procedure and care pathway.
  • To support the existing and create and deliver external professionals commissioned training packages for BCYP within the region.
  • In conjunction with the specialist respiratory teams in the region, act as an expert resource and advocate for BCYP with LTV needs and their families, giving support and advice that is appropriately planned to meet each individuals needs empowering them to manage their treatment regimes, to recognise any deterioration or acute episodes requiring immediate specialist attention and how to access the necessary support.
  • Support the safe delivery of hydrotherapy to BCYPs with complex respiratory and LTV needs.
  • To facilitate discharge from hospital for BCYP on LTV to EACH or home environment.
  • To contribute to a seamless transition of care for young people with LTV and respiratory disease and their families from the paediatric respiratory multidisciplinary team to the adult service promoting full preparation for the young person over an agreed period of time.
  • Have a visible presence within the EACH clinical setting (hospice and home) by providing buddied clinical time to facilitate situational learning, acting as a role model and clinical leader to care staff.

Professional Responsibility

  • Develop and maintain own clinical skills and knowledge in BCYP LTV and respiratory care that is evidenced based aiming to achieve a 'best practice' principle, keeping up to date with new advances in treatment and new developments in research in respiratory and palliative care.
  • Promote positive working relationships within and across EACH care teams, and with families by establishing and maintaining effective communication processes. Work collaboratively with all EACH departments.
  • Develop and maintain positive relationships within, and external to, EACH.
  • Advocate for and support parents, children and young people.
  • Recognise the level of emotional stress that may be encountered when working with BCYP and their families who are dealing with life restricting issues and to seek appropriate support for self.
  • Have an awareness of own personal responses in relation to the maintenance of a safe environment and identification of potential risk for all personnel, BCYP, families and significant others.
  • Act as a positive and inclusive role model to support change.
  • Fulfil professional clinical supervision and continuing professional development requirements.

Education and Governance Activity

  • Contribute to developing the EACH workforce, including training and teaching to support safe practice.
  • Develop effective working relationships internally and externally to EACH to ensure collaborative progress on matters relating to education and practice development.
  • Network with other paediatric respiratory nurse specialists throughout the UK, joining appropriate organisations in order to collaborate, share and benchmark practices and initiatives.
  • Promote the introduction of research based findings in an endeavour to continually improve the care of BCYP receiving LTV at home or in hospice care.
  • Develop and deliver training within the EACH education and training programme and other MCN / national / international training events as required.
  • Participate in management supervision and annual appraisal ensuring challenging objectives are set and achieved and a personal development plan is agreed.
  • Adopt a reflective approach to personal practice and learn from experience.
  • Participate in relevant clinical governance activities within EACH.
  • Participate in student placement programmes where appropriate, providing mentorship as required.
  • Contribute to EACHs audit and service evaluation programme as required.
  • Provide statistical information as required.

This job description is not exhaustive and may be amended as necessary. It is intended as a guide to the duties and responsibilities of the post.

Job description

Job responsibilities

Clinical Responsibilities

  • To be a highly competent practitioner providing specialist clinical skills and knowledge in relation to respiratory care for BCYP with life limiting conditions using EACH services.
  • Line management duties for other staff members within the LTV team at EACH.
  • To deliver highly specialised individualised, family centred, nursing care to BCYP with respiratory disease and LTV needs. Ensuring all BCPYs have individualised LTV care plans for the safe delivery of care.
  • To implement teaching packages and competency frameworks for BCYP with respiratory and LTV needs in EACH and to be actively involved in the development of respiratory related protocols and procedures e.g. policies, standard operating procedure and care pathway.
  • To support the existing and create and deliver external professionals commissioned training packages for BCYP within the region.
  • In conjunction with the specialist respiratory teams in the region, act as an expert resource and advocate for BCYP with LTV needs and their families, giving support and advice that is appropriately planned to meet each individuals needs empowering them to manage their treatment regimes, to recognise any deterioration or acute episodes requiring immediate specialist attention and how to access the necessary support.
  • Support the safe delivery of hydrotherapy to BCYPs with complex respiratory and LTV needs.
  • To facilitate discharge from hospital for BCYP on LTV to EACH or home environment.
  • To contribute to a seamless transition of care for young people with LTV and respiratory disease and their families from the paediatric respiratory multidisciplinary team to the adult service promoting full preparation for the young person over an agreed period of time.
  • Have a visible presence within the EACH clinical setting (hospice and home) by providing buddied clinical time to facilitate situational learning, acting as a role model and clinical leader to care staff.

Professional Responsibility

  • Develop and maintain own clinical skills and knowledge in BCYP LTV and respiratory care that is evidenced based aiming to achieve a 'best practice' principle, keeping up to date with new advances in treatment and new developments in research in respiratory and palliative care.
  • Promote positive working relationships within and across EACH care teams, and with families by establishing and maintaining effective communication processes. Work collaboratively with all EACH departments.
  • Develop and maintain positive relationships within, and external to, EACH.
  • Advocate for and support parents, children and young people.
  • Recognise the level of emotional stress that may be encountered when working with BCYP and their families who are dealing with life restricting issues and to seek appropriate support for self.
  • Have an awareness of own personal responses in relation to the maintenance of a safe environment and identification of potential risk for all personnel, BCYP, families and significant others.
  • Act as a positive and inclusive role model to support change.
  • Fulfil professional clinical supervision and continuing professional development requirements.

Education and Governance Activity

  • Contribute to developing the EACH workforce, including training and teaching to support safe practice.
  • Develop effective working relationships internally and externally to EACH to ensure collaborative progress on matters relating to education and practice development.
  • Network with other paediatric respiratory nurse specialists throughout the UK, joining appropriate organisations in order to collaborate, share and benchmark practices and initiatives.
  • Promote the introduction of research based findings in an endeavour to continually improve the care of BCYP receiving LTV at home or in hospice care.
  • Develop and deliver training within the EACH education and training programme and other MCN / national / international training events as required.
  • Participate in management supervision and annual appraisal ensuring challenging objectives are set and achieved and a personal development plan is agreed.
  • Adopt a reflective approach to personal practice and learn from experience.
  • Participate in relevant clinical governance activities within EACH.
  • Participate in student placement programmes where appropriate, providing mentorship as required.
  • Contribute to EACHs audit and service evaluation programme as required.
  • Provide statistical information as required.

This job description is not exhaustive and may be amended as necessary. It is intended as a guide to the duties and responsibilities of the post.

Person Specification

Experience

Essential

  • Evidence of highly developed specialist childrens LTV and respiratory care, knowledge underpinned by theory and experience
  • Evidence experience of communicating complex, sensitive information with children, families, and carers in an empathetic and inclusive manner
  • Evidence experience of inclusive leadership, with an understanding of the diverse factors that motivate individuals, fostering a supportive and empowering team environment.
  • Evidence experience in assessing and interpreting patient related information and recommending appropriate actions
  • Evidence of analysing problems, developing practical solutions, and providing recommendations that are sustainable and evidence-based of good governance and best practice
  • Evidence of effective training, teaching, facilitation and presentation skills
  • Experience and understanding of effective resource management
  • Experience of carrying out educational audits and clinical audits analysing and interpreting data and making recommendations

Desirable

  • Evidence of implementing change in the workplace.
  • Evidence of palliative care work with BCYP
  • Evidence of service improvement

Other requirements

Essential

  • Current full, valid driving license and own transport to facilitate travel across the region on a weekly basis.
  • Commitment to own continuing professional development.

Desirable

  • Ability to travel to national meetings on an occasional basis.

Qualifications

Essential

  • Professional qualification in nursing with valid NMC registration
  • Highly developed professional knowledge acquired at degree level or above (or evidence of working towards)
  • Knowledge of mentorship, education and development practice with evidence of post graduate study or equivalent (e.g. A1 C&G Award; C&G 730 or equivalent; Assessor and mentorship level 2/3 or equivalent)

Desirable

  • Detailed knowledge and understanding of BCYP palliative care services and recent initiatives in BCYP health and social care

Skills and abilities

Essential

  • Clear and confident communicator with the ability to understand communication barriers and influence a diverse range of individuals to achieve shared outcomes.
  • Ability to work effectively with individuals from diverse backgrounds, skills and experiences.
  • Demonstrated experience and proficiency in digital tools, including word processing, email communication, presentation software, spreadsheets, and virtual collaboration platforms.
  • Demonstrate ability to establish personal credibility, having a collaborative and participative approach to achieve successful multi-disciplinary team and partnership working.
  • Demonstrated ability to manage time effectively, prioritise tasks, meet deadlines, and maintain attention to detail in a dynamic work environment.

Desirable

  • Demonstrated experience with digital systems, including database management and other advanced IT tools.
  • Ability to problem solve, compare a range of options and generate solutions.
  • Able to adopt a participative approach to regulatory inspections and standard monitoring initiatives.
  • Ability to conduct evaluative research in mentorship/education practice and the practice learning environment in childrens palliative care.
Person Specification

Experience

Essential

  • Evidence of highly developed specialist childrens LTV and respiratory care, knowledge underpinned by theory and experience
  • Evidence experience of communicating complex, sensitive information with children, families, and carers in an empathetic and inclusive manner
  • Evidence experience of inclusive leadership, with an understanding of the diverse factors that motivate individuals, fostering a supportive and empowering team environment.
  • Evidence experience in assessing and interpreting patient related information and recommending appropriate actions
  • Evidence of analysing problems, developing practical solutions, and providing recommendations that are sustainable and evidence-based of good governance and best practice
  • Evidence of effective training, teaching, facilitation and presentation skills
  • Experience and understanding of effective resource management
  • Experience of carrying out educational audits and clinical audits analysing and interpreting data and making recommendations

Desirable

  • Evidence of implementing change in the workplace.
  • Evidence of palliative care work with BCYP
  • Evidence of service improvement

Other requirements

Essential

  • Current full, valid driving license and own transport to facilitate travel across the region on a weekly basis.
  • Commitment to own continuing professional development.

Desirable

  • Ability to travel to national meetings on an occasional basis.

Qualifications

Essential

  • Professional qualification in nursing with valid NMC registration
  • Highly developed professional knowledge acquired at degree level or above (or evidence of working towards)
  • Knowledge of mentorship, education and development practice with evidence of post graduate study or equivalent (e.g. A1 C&G Award; C&G 730 or equivalent; Assessor and mentorship level 2/3 or equivalent)

Desirable

  • Detailed knowledge and understanding of BCYP palliative care services and recent initiatives in BCYP health and social care

Skills and abilities

Essential

  • Clear and confident communicator with the ability to understand communication barriers and influence a diverse range of individuals to achieve shared outcomes.
  • Ability to work effectively with individuals from diverse backgrounds, skills and experiences.
  • Demonstrated experience and proficiency in digital tools, including word processing, email communication, presentation software, spreadsheets, and virtual collaboration platforms.
  • Demonstrate ability to establish personal credibility, having a collaborative and participative approach to achieve successful multi-disciplinary team and partnership working.
  • Demonstrated ability to manage time effectively, prioritise tasks, meet deadlines, and maintain attention to detail in a dynamic work environment.

Desirable

  • Demonstrated experience with digital systems, including database management and other advanced IT tools.
  • Ability to problem solve, compare a range of options and generate solutions.
  • Able to adopt a participative approach to regulatory inspections and standard monitoring initiatives.
  • Ability to conduct evaluative research in mentorship/education practice and the practice learning environment in childrens palliative care.

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Additional information

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Employer details

Employer name

East Anglia’s Children’s Hospices

Address

Church Lane

Milton

Cambridgeshire

CB24 6AB


Employer's website

https://www.each.org.uk (Opens in a new tab)


Employer details

Employer name

East Anglia’s Children’s Hospices

Address

Church Lane

Milton

Cambridgeshire

CB24 6AB


Employer's website

https://www.each.org.uk (Opens in a new tab)


Employer contact details

For questions about the job, contact:

Recruitment team

Recruitment team

hrinbox@each.org.uk

07442465971

Details

Date posted

14 October 2025

Pay scheme

Other

Salary

£47,810 to £54,710 a year

Contract

Permanent

Working pattern

Full-time

Reference number

EACH1146700

Job locations

Church Lane

Milton

Cambridgeshire

CB24 6AB


The Treehouse Hospice

St. Augustines Gardens

Ipswich

IP3 8NS


The Nook

Pigot Lane

Norwich

NR14 7PX


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