LOROS Hospice

Motor Neurone Disease Nurse Specialist

The closing date is 21 October 2025

Job summary

We are seeking a committed and compassionate Nurse Specialist to provide maternity cover within our Motor Neurone Disease (MND) Palliative Care Team. You will need to have well developed interpersonal skills, experience and be passionate for caring for patients with MND and/or other neurological conditions, in community settings, or within Palliative and end of life care needs.

Due to the nature of the role and visiting patients in remote areas it is essential that you hold a current driving licence and have access to a car/transfer for work purposes.

Current NHS pension scheme members can continue in the scheme under LOROS' direction body status and NHS service will be taken into consideration in relation to annual leave entitlement.

Main duties of the job

We are looking for a nurse who will:

Act as a key worker, experienced in caring for patients with Motor Neurone Disease, supporting individuals and their families from diagnosis through to end of life. Experienced in caring for patients.

Passionate about delivering high-quality, person-centred care.

A confident communicator with strong teamwork and independent working skills.

Work collaboratively with the multi-disciplinary team at LOROS and across the wider health and social care community.

Deliver specialist care across Leicester, Leicestershire and Rutland.

Contribute to training programmes for healthcare professionals and carers.

Take part in opportunities for personal development, service improvement and clinical audit.

About us

LOROS Hospice is a local charity and every year we care for over 2,500 people across Leicester, Leicestershire and Rutland. We deliver free, high-quality, compassionate care and support to terminally ill patients, their family and carers.

Details

Date posted

08 October 2025

Pay scheme

Other

Salary

£35,463 to £42,841 a year

Contract

Fixed term

Duration

12 months

Working pattern

Part-time

Reference number

B0003-25-0009

Job locations

Groby Road

Leicester

LE3 9QE


Job description

Job responsibilities

Clinical

1. Undertake home visits and complete holistic specialist needs assessments.

2. Provide specialist intervention to support patients and carers.

3. Act as a resource for the primary health care team, other specialist teams statutory organisations and voluntary organisations on issues relating to the care of patients with MND.

4. Provide a telephone advice service to patients, carers and professionals.

5. In collaboration with the multi-professional team, plan the provision of care based on a holistic needs assessment.

6. Manage nurse led MDT meetings and undertake nurse led MND clinics.

7. Liaise with other staff and departments at the Hospice, and refer to other agencies that can provide additional forms of support for example, MNDA.

8. In conjunction with other members of the Multi-disciplinary Team (MDT), monitor the progress of all MND patients.

9. Provide information to patients and carers to enable them to make informed choices regarding care.

10. Comply with the NMC code of practice and adhere to all policies and procedures of the Leicestershire & Rutland Hospice.

11. Comply with Health and Social Care Act 2008/Care Quality Commission.

12. According to LOROS Hospice Policy and where the Nurse Specialist has undergone training, prescribe medication for patients.

Education

1. Participate in any relevant training programmes for any professionals or non-professionals both within Leicester, Leicestershire & Rutland and nationally and as required.

2. Participate in in-service education programmes and be responsive to external influences and new initiatives.

3. Participate in education programmes for professional visitors on placement.

4. To participate in the provision for information.

5. Attends mandatory training and is responsible for developing own personal development plan.

6. Provide co-support to team colleagues.

7 Participate in clinical supervision and reflective practice sessions.

Research & Audit

1. Participate in any multi-professional audit, which evaluates the effectiveness of the care, provided by LOROS Nurse Specialist Team.

2. Participate in and initiate multi-professional audit.

3. Be aware of new developments in the care of patients with MND and implement appropriate research based practice.

4. Keep up to date with current advances in nursing practice and research and to take responsibility for his/her own professional development (PREP) and maintaining registration.

5. Participate in the development of standards for the MND Nurse Specialists and for the wider CNS team.

Managerial

1. Be an active member of the LOROS Community Nurse Specialist Team, contributing to team initiatives and developments.

2. Contribute towards development of strategies for MND services within Leicester, Leicestershire & Rutland.

3. Participate in appropriate Multi-professional meetings.

4. Demonstrate effective day to day planning through efficient management of self, caseload and resources.

5. Maintain accurate standardised electronic patient records for activity, evaluation, research and audit purposes.

6. Maintain confidentiality and conform to the Data Protection Act.

7. Comply with requirements of the Health and safety at Work Act and comply with risk assessments monitoring and maintaining health, safety and security of self and others.

Job description

Job responsibilities

Clinical

1. Undertake home visits and complete holistic specialist needs assessments.

2. Provide specialist intervention to support patients and carers.

3. Act as a resource for the primary health care team, other specialist teams statutory organisations and voluntary organisations on issues relating to the care of patients with MND.

4. Provide a telephone advice service to patients, carers and professionals.

5. In collaboration with the multi-professional team, plan the provision of care based on a holistic needs assessment.

6. Manage nurse led MDT meetings and undertake nurse led MND clinics.

7. Liaise with other staff and departments at the Hospice, and refer to other agencies that can provide additional forms of support for example, MNDA.

8. In conjunction with other members of the Multi-disciplinary Team (MDT), monitor the progress of all MND patients.

9. Provide information to patients and carers to enable them to make informed choices regarding care.

10. Comply with the NMC code of practice and adhere to all policies and procedures of the Leicestershire & Rutland Hospice.

11. Comply with Health and Social Care Act 2008/Care Quality Commission.

12. According to LOROS Hospice Policy and where the Nurse Specialist has undergone training, prescribe medication for patients.

Education

1. Participate in any relevant training programmes for any professionals or non-professionals both within Leicester, Leicestershire & Rutland and nationally and as required.

2. Participate in in-service education programmes and be responsive to external influences and new initiatives.

3. Participate in education programmes for professional visitors on placement.

4. To participate in the provision for information.

5. Attends mandatory training and is responsible for developing own personal development plan.

6. Provide co-support to team colleagues.

7 Participate in clinical supervision and reflective practice sessions.

Research & Audit

1. Participate in any multi-professional audit, which evaluates the effectiveness of the care, provided by LOROS Nurse Specialist Team.

2. Participate in and initiate multi-professional audit.

3. Be aware of new developments in the care of patients with MND and implement appropriate research based practice.

4. Keep up to date with current advances in nursing practice and research and to take responsibility for his/her own professional development (PREP) and maintaining registration.

5. Participate in the development of standards for the MND Nurse Specialists and for the wider CNS team.

Managerial

1. Be an active member of the LOROS Community Nurse Specialist Team, contributing to team initiatives and developments.

2. Contribute towards development of strategies for MND services within Leicester, Leicestershire & Rutland.

3. Participate in appropriate Multi-professional meetings.

4. Demonstrate effective day to day planning through efficient management of self, caseload and resources.

5. Maintain accurate standardised electronic patient records for activity, evaluation, research and audit purposes.

6. Maintain confidentiality and conform to the Data Protection Act.

7. Comply with requirements of the Health and safety at Work Act and comply with risk assessments monitoring and maintaining health, safety and security of self and others.

Person Specification

Experience

Essential

  • Significant post-registration/proven experience at band 5 or above in relevant setting

Desirable

  • Community experience
  • Experience of caring for people with a neurological disease
  • Palliative care experience
  • Teaching experience

Qualifications

Essential

  • Registered nurse
  • Evidence of study at degree level
  • Willing to undertake training specific to the role

Desirable

  • Relevant Degree
  • Teaching qualification
  • Non-medical prescribing qualification

Knowledge

Essential

  • Awareness of needs of patients and families with Motor neurone Disease / Neurological conditions
  • Evidence of continued professional development.

Desirable

  • Knowledge of how working in the community effects patients care

Skills / Abilities

Essential

  • Excellent communication and interpersonal skills
  • Leadership potential
  • Involvement in Audit and Change Management.
  • Awareness of impact of audit and research on practice.
  • IT literate

Desirable

  • Advanced communication skills
  • Advance care planning training
  • Experience of using electronic patient records
Person Specification

Experience

Essential

  • Significant post-registration/proven experience at band 5 or above in relevant setting

Desirable

  • Community experience
  • Experience of caring for people with a neurological disease
  • Palliative care experience
  • Teaching experience

Qualifications

Essential

  • Registered nurse
  • Evidence of study at degree level
  • Willing to undertake training specific to the role

Desirable

  • Relevant Degree
  • Teaching qualification
  • Non-medical prescribing qualification

Knowledge

Essential

  • Awareness of needs of patients and families with Motor neurone Disease / Neurological conditions
  • Evidence of continued professional development.

Desirable

  • Knowledge of how working in the community effects patients care

Skills / Abilities

Essential

  • Excellent communication and interpersonal skills
  • Leadership potential
  • Involvement in Audit and Change Management.
  • Awareness of impact of audit and research on practice.
  • IT literate

Desirable

  • Advanced communication skills
  • Advance care planning training
  • Experience of using electronic patient records

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Additional information

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Employer details

Employer name

LOROS Hospice

Address

Groby Road

Leicester

LE3 9QE

Employer details

Employer name

LOROS Hospice

Address

Groby Road

Leicester

LE3 9QE

Employer contact details

For questions about the job, contact:

Director of Care Services

Jane Pickard

hannahbold@loros.co.uk

01162313771

Details

Date posted

08 October 2025

Pay scheme

Other

Salary

£35,463 to £42,841 a year

Contract

Fixed term

Duration

12 months

Working pattern

Part-time

Reference number

B0003-25-0009

Job locations

Groby Road

Leicester

LE3 9QE


Supporting documents

Privacy notice

LOROS Hospice's privacy notice (opens in a new tab)