Southern Hospice Group

Clinical Nurse Specialist Paediatric Palliative Care, COAST

Information:

This job is now closed

Job summary

At Southern Hospice Group and Chestnut Tree House (CTH), we believe every child with a life-limiting

condition deserves outstanding, compassionate care, wherever they are.

Following on from successful proof-of-concept, Southern Hospice Group (SHG) has been awarded the

contract to establish a 24/7 consultant led childrens palliative and end of life care service for Sussex.

We are now recruiting to grow our team of clinical nurse specialists in Paediatric Palliative Care to

support the mobilisation and delivery of the COAST (Childrens Outreach & Symptom Team) Service.

Working with our Nurse Consultant and Lead Consultant, this is a fantastic opportunity to be part of

the clinical team that shapes and delivers a fully integrated 24/7 paediatric palliative care service

across Sussex, working across home, hospice, community and hospital settings to improve continuity

of care, reduce avoidable hospital admissions, and ensure families can access expert support

whenever they need it.

You will use your specialist clinical skills, experience, knowledge and expertise to provide excellent

care to babies, children and young people and their families/carers across Sussex. You will provide

high quality symptom and palliative care, working closely with Chestnut Tree House (Childrens

Hospice) and community teams to provide a seamless comprehensive service.

Main duties of the job

  • Providing specialist paediatric palliative and end-of-life care across hospice, home, hospitaland community settings
  • Supporting complex symptom management, clinical decision-making and non-medical prescribing
  • Supporting children and families through sensitive conversations, advance care planning and ReSPECT discussions
  • Working in partnership with CTH in house and community team and the wider MDT to ensurethat the care delivered is of the highest standard
  • Acting as a specialist nursing resource for symptom and palliative care, monitoring andevaluating the effects of prescribed treatments, adjusting medication within agreed protocols in conjunction with the medical team

About us

Southern Hospice Group is the UKs largest local Hospice Group, comprising two adults hospices and

one Childrens Hospice. We are committed to providing exceptional and compassionate care to

adults, children and their families across Sussex. Bringing our teams and resources together as one

organisation means we can focus on new and plans for our people and patients and provide even

greater opportunities for our workforce.

Chestnut Tree House is the childrens hospice for Sussex and Southeast Hampshire, providing

specialist palliative care for children and young people with life-limiting conditions.

St Barnabas House provides specialist palliative care to adults in the Worthing, Adur, Arun and

Henfield areas through a range of services, including in-patient care and community living well

services.

Martlets provides essential care to adults affected by terminal illness in Brighton and Hove and

surrounding areas. Our expert teams provide the very best care and support, helping patients and

their loved ones to live life to the full during the precious time they have together.

We warmly welcome applications from all sections of our community. We also invite applications

from suitably experienced people from all industry sectors who can demonstrate the skills, ability and

enthusiasm to work with a people-centric organisation like ours.

Details

Date posted

09 July 2026

Pay scheme

Other

Salary

£48,751 to £54,661 a year

Contract

Permanent

Working pattern

Full-time, Part-time, Flexible working

Reference number

B0265-26-0022

Job locations

Chestnut Tree House

Dover Lane

Arundel

West Sussex

BN18 9BX

United Kingdom


Job description

Job responsibilities

  • Providing professional and clinical leadership in the provision of symptom and palliative care across care settings for BCYP under the care of COAST palliative care team.
  • To work in partnership with CTH In house and Community teams and the wider MDT, demonstrating excellent communication to ensure high quality seamless care for Children and Young people.
  • Acting as an expert clinical resource for symptom and palliative care for BCYPs, their families and health care professionals across care settings. These settings will include hospice, hospital, home, school and GPs.
  • Providing support to BCYPs and their families where required through community visits to hospital, home or hospice along with relevant healthcare professionals.
  • Maintaining an awareness of the diverse nature of the COAST catchment area in order to provide child/family centred care.
  • Demonstrating a high degree of professional autonomy, using clinical judgement to provide advice, always referring to the nurse consultant or medical consultants as required. Clinical
  • Actively involved with the on-going development of the COAST service, in particular the symptom management service and contributing to development through research, audit and quality improvement.
  • Providing clinical support and continuity of care to babies, children and young people with symptom and palliative care needs.
  • Taking joint responsibility with the consultant for the development of individual and generic symptom management plans in liaison with the CTH contracted GPs and external nursing / medical providers.
  • Supporting and educating families with symptom and palliative care needs in conjunction with the Consultant in Palliative Medicine, the Symptom Management Team and other members of the multi-disciplinary team (MDT).
  • Jointly monitoring and evaluating the effects of prescribed treatment, adjusting medication within agreed protocols and in conjunction with the medical team.
  • Facilitating the completion of Advance Care Plans including resuscitation plans (when competent), symptom management plans and ambulance directives liaising with all appropriate stakeholders.
  • Working in partnership with all members of the MDT, encouraging and promoting effective team working from all disciplines within CTH.
  • Work in collaboration with the in-house and community teams, taking the lead as needed, to facilitate hospital discharges for end of life, compassionate extubation, step down care and symptom management to ensure a smooth transition and excellent liaison. Undertake family and professional meetings at referring hospitals as needed.
  • Coordinating transition to adult services when appropriate in conjunction with the transition coordinator.
  • Providing educational and supportive strategies to meet the needs of the BCYPs with complex symptoms.
  • Follow all hospice safeguarding policies and procedures ensuring escalation of safeguarding concerns in a timely manner.
  • Acting as a knowledgeable resource for specialist advice and facilitating practice, knowledge and skill in relation to the specific needs of patients and families receiving palliative care and provide appropriate bereavement support.
  • Attending relevant outpatient clinics and MDT meetings.
  • Contributing to the clinics run by the team at the hospices with the Consultant in Paediatric Palliative Care.
  • Ensuring written communication and correspondence is to a high standard and shared with relevant professionals on contacts with CYPs.
  • Participate in the community on call provision with progression to the symptom management on call rota (separate arrangement) when fully competent.

Job description

Job responsibilities

  • Providing professional and clinical leadership in the provision of symptom and palliative care across care settings for BCYP under the care of COAST palliative care team.
  • To work in partnership with CTH In house and Community teams and the wider MDT, demonstrating excellent communication to ensure high quality seamless care for Children and Young people.
  • Acting as an expert clinical resource for symptom and palliative care for BCYPs, their families and health care professionals across care settings. These settings will include hospice, hospital, home, school and GPs.
  • Providing support to BCYPs and their families where required through community visits to hospital, home or hospice along with relevant healthcare professionals.
  • Maintaining an awareness of the diverse nature of the COAST catchment area in order to provide child/family centred care.
  • Demonstrating a high degree of professional autonomy, using clinical judgement to provide advice, always referring to the nurse consultant or medical consultants as required. Clinical
  • Actively involved with the on-going development of the COAST service, in particular the symptom management service and contributing to development through research, audit and quality improvement.
  • Providing clinical support and continuity of care to babies, children and young people with symptom and palliative care needs.
  • Taking joint responsibility with the consultant for the development of individual and generic symptom management plans in liaison with the CTH contracted GPs and external nursing / medical providers.
  • Supporting and educating families with symptom and palliative care needs in conjunction with the Consultant in Palliative Medicine, the Symptom Management Team and other members of the multi-disciplinary team (MDT).
  • Jointly monitoring and evaluating the effects of prescribed treatment, adjusting medication within agreed protocols and in conjunction with the medical team.
  • Facilitating the completion of Advance Care Plans including resuscitation plans (when competent), symptom management plans and ambulance directives liaising with all appropriate stakeholders.
  • Working in partnership with all members of the MDT, encouraging and promoting effective team working from all disciplines within CTH.
  • Work in collaboration with the in-house and community teams, taking the lead as needed, to facilitate hospital discharges for end of life, compassionate extubation, step down care and symptom management to ensure a smooth transition and excellent liaison. Undertake family and professional meetings at referring hospitals as needed.
  • Coordinating transition to adult services when appropriate in conjunction with the transition coordinator.
  • Providing educational and supportive strategies to meet the needs of the BCYPs with complex symptoms.
  • Follow all hospice safeguarding policies and procedures ensuring escalation of safeguarding concerns in a timely manner.
  • Acting as a knowledgeable resource for specialist advice and facilitating practice, knowledge and skill in relation to the specific needs of patients and families receiving palliative care and provide appropriate bereavement support.
  • Attending relevant outpatient clinics and MDT meetings.
  • Contributing to the clinics run by the team at the hospices with the Consultant in Paediatric Palliative Care.
  • Ensuring written communication and correspondence is to a high standard and shared with relevant professionals on contacts with CYPs.
  • Participate in the community on call provision with progression to the symptom management on call rota (separate arrangement) when fully competent.

Person Specification

Experience

Essential

  • Specialist experience in neonatal/paediatric palliative care
  • Proven experience of teaching
  • Significant experience of palliative care, end of life care, symptom management, peri-natal/neonatal or community care
  • Proven leadership and management experience
  • Demonstrable experience in audit, quality improvement
  • Proven experience of effective multi-professional working

Qualifications

Essential

  • Registered Nurse (Child)
  • First level degree in related topic
  • Post graduate qualification in palliative care, childrens community nursing, neonatal or relevant subject
  • Evidence of master's level learning
  • Evidence of continuing professional development
  • Physical Assessment course
  • Nurse prescriber or willingness to work towards within 12 months of appointment
  • Advanced communication course or similar
Person Specification

Experience

Essential

  • Specialist experience in neonatal/paediatric palliative care
  • Proven experience of teaching
  • Significant experience of palliative care, end of life care, symptom management, peri-natal/neonatal or community care
  • Proven leadership and management experience
  • Demonstrable experience in audit, quality improvement
  • Proven experience of effective multi-professional working

Qualifications

Essential

  • Registered Nurse (Child)
  • First level degree in related topic
  • Post graduate qualification in palliative care, childrens community nursing, neonatal or relevant subject
  • Evidence of master's level learning
  • Evidence of continuing professional development
  • Physical Assessment course
  • Nurse prescriber or willingness to work towards within 12 months of appointment
  • Advanced communication course or similar

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Certificate of Sponsorship

Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).

From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Additional information

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Certificate of Sponsorship

Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).

From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Employer details

Employer name

Southern Hospice Group

Address

Chestnut Tree House

Dover Lane

Arundel

West Sussex

BN18 9BX

United Kingdom


Employer's website

https://www.stbarnabas-hospice.org.uk/ (Opens in a new tab)


Employer details

Employer name

Southern Hospice Group

Address

Chestnut Tree House

Dover Lane

Arundel

West Sussex

BN18 9BX

United Kingdom


Employer's website

https://www.stbarnabas-hospice.org.uk/ (Opens in a new tab)


Employer contact details

For questions about the job, contact:

Clinical Nurse Specialist

Leanne Asling

Hroperations@southernhospicegroup.org.uk

01903706317

Details

Date posted

09 July 2026

Pay scheme

Other

Salary

£48,751 to £54,661 a year

Contract

Permanent

Working pattern

Full-time, Part-time, Flexible working

Reference number

B0265-26-0022

Job locations

Chestnut Tree House

Dover Lane

Arundel

West Sussex

BN18 9BX

United Kingdom


Privacy notice

Southern Hospice Group's privacy notice (opens in a new tab)